severe muscle spasms in my feet,legs and hands since implant Anyone else have problems ?

Posted , 4 users are following.

I have thought about having my spinal cord stimulator removed.  The severe muscle spasms are so bad since last July 2017 when my implant was done.

I almost wonder if this could be my body rejecting it ??  Any thoughts ?

 

0 likes, 7 replies

7 Replies

  • Posted

    Hi DeeDee58221,

    I have the same issues and wondered if it is the SCS or something else because I never had it until after I had the SCS. What I did do is lowered my remote, and I barely use it now. I only use the SCS when I first have pain, and what it does for me is cut down the pain down faster and then I turn it off. Since having the SCS my pain is the same except I use the monitor to cut the pain faster.  I hope you get better and if not, have your Dr. to take it out.  But from listening to people on here, I would ask the Dr. about if you would have more pain after you have it removed.  Because after I had the Temp removed I was in worse pain, so I got the perm, and so far doing okay.

    • Posted

      I go to see my pain management dr this afternoon and I will ask her about it. I'm not sure if she would know more than the surgeon that did the surgery.  I have done some research on my own and found out that my thyroid may have something to do with it. I had my thyroid checked last week and it's low. Also tried taking a MVI supplement of Calcium,magnesium and zinc.  I also turn off the SCS at night. During the day I have it on a lower setting, but when the pain increases, then I put it on continued mode and crank it up so I get the vibrations and tingling to offset the pain. I really think this device is mainly something to be a Distraction from the pain.  I was told by my rep that The device only works for NERVE PAIN and nothing more.

    • Posted

      That sounds about right Distraction... :-)

      I'm still off and on, about getting it taken out because my legs, feet and hands were not bothering me before getting this scs.

  • Posted

    I akso would luke to know what caused that as I only had trial and suffered severe spasms about 2weeks..
    • Posted

      When I had the trial, I actually had better results pain wise. So I went ahead with the permanent and it took a very long time to get any lasting results. I have had the permanent in since July of 2017.  The muscle spasms started after that.  My pain dr. asked me if I had any muscle spasms before and I told her no.  I have been keeping track of everything in a journal just for my SCS. My rep re-programmed me several times and I thought we had it fine-tuned.  For a short time I was getting pain relief and using the continuous mode, but I had to sit down or lay down to use it, no driving while in this mode. 

       

    • Posted

      I loved the results I got at the trial 2016 May, but not what happened afterwards. To make it short I still suffer leg weakness when not sitting, diarrhea , and still pain at shoulder blade to ribs. No doctor can find anything to cause these symptons I got days after implant??? Quess I am so glad I didnt go permanent because I knew somthing changed in my body even though PM insisted it wasn't SCS. causing them???

      Prayers for all who have difficult lives on these forums that things grow better for you.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.