Severe muscle twitching / limbs jumping
Posted , 7 users are following.
Hi all. I am struggling just now. I had been feeling a bit better and my bloods have been showing reduced levels of esr and crp. Since being on 15mg of pred. I am now supposed to do my dead slow drop to 14mg but these last few days I have been experiencing something new and it's very scary and extremely painful.
I have been getting excessive tightness in my muscles (arms, legs, neck....& a lesser tightness around the back of my ribs... Not sure if that from holding myself a bit tight in panic/stress though) from the tightness comes a build up of intense pain then at the peak of the pain my muscle will jerk. The tightness is leaving my muscles sore, like after a severe cramp. Also at the peak of the pain before my muscles twitch or even jerk? my muscles seem to be in spasm my hands want to curl up etc.
My question to you all is this... Is this PMR or down to the drugs I am taking?
I am on the pred. plus 50micrograms of fentynl in patch form. I have also started Azathiapine 3 weeks ago (but have had these symptoms in a lesser scale a few weeks prior to starting Aza)
Please advise. Feeling scared. But not sure to go to seek medical help in case they just say it's your PMR go away stop bothering us lol.
0 likes, 5 replies
karenjaninaz Charlieschoc
Posted
Charlieschoc karenjaninaz
Posted
Thank you for your reply
karenjaninaz Charlieschoc
Posted
EileenH Charlieschoc
Posted
However - I'd suggest you need your bloods checked, especially electrolytes (potassium) and calcium and magnesium. In the meantime - try eating bananas, beans, dark leafy greens, potatoes, squash, yogurt, fish, avocados, mushrooms. And possibly try a magnesium supplement in the meantime - it being the weekend and all! You are taking a calcium supplement aren't you? Pred makes you lose all those things (potassium, magnesium and calcium) and low levels of one or all will lead to cramps. If it gets really bad before Monday don't worry about calling 111, explaining and asking for a doctor's advice - they might be able to help. In a sense it probably is just the pred - but it is something that can be nasty.
Charlieschoc EileenH
Posted
I had full bloods taken yesterday morning to see how the Aza is affecting me so hopefully if there is anything there I can get it sorted. I do know whatever it is it's very scary. I am quite a toughie but this has had me close to tears. xx