Severe Osteoarthritis all over my body...
Posted , 39 users are following.
Hi, I am new to this forum, and really am seeking any information I can find. Just wondering if anyone knows of or has osteoarthritis all over, I mean everywhere. I have it in my feet, ankles, knees, hips, spine, hands, fingers, and elbows and shoulders. My right hip is gone I need a total hip replacement, and I started having problems walking like my legs don't want to work about 3 months ago, since learned that the arthritis in my lumbar spine is severe, waiting for an MRI because the doctor thinks I have some kind of nerve compression or nerve damage. He also said the rest of the spine surely has some issues to, just from looking at how bad everything else is. Just ordered ex-rays again to see if the left hip is also gone or if most of that pain is from the back problems. I am worried I will end up in a wheelchair. I have had arthritis for several years and have been taking Tramadol and Ibuprofin 600 three times a day each for quite some time now, but the pain has become so severe that does not take care of it all. The Orthopedic doctor gave me two steroid shots in the lower spine area a couple of days ago, and that helped with the shooting pains going down my legs and buttocks (he said he thought was nerve pain), and that did help quite a bit with that part of the pain. I am 61 years old and although I knew the arthritis would "get worse over time" (as the Rheumatologist told me), I never dreamed I would be wondering if I am going to loose my ability to even walk or function. Thanks for listening...
7 likes, 44 replies
lyn65518 noplaybarbie
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erela lyn65518
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Dear Lyn,
I am new to this forum...... I have had something "wrong" with my bones since childhood. My father was a doctor and did his best trying to get the best to figure out "what" was wrong with my bones....... in 1986 I became a "lab rat" up at UCSF and received one of the first "non" cemented hip as I was allergic to all the "cements" used for this procedure. Along with bad bones I have the weirdest allergies...... cements, adhesives, resorbing sutures, latex, then the "drugs"...omg.... if I am not allergic to them my stomach will start to bleed due to 40+ years of anti inflammatories such as Motrin and such.... I am fed up with feeling terrible 24-7 too. I use to find relief in the pool too! I can not get in and out of a pool. I so miss feeling better in the hot water of a pool......
My heart goes out to you and all my fellow "intense pain crew"....... what are we suppose to do??......
If you feel like writing me back I would love to hear from you!
Erela
cheryl90571 noplaybarbie
Posted
Looking back, I felt the first symptoms around age 30 when our first son was born. Symptoms came and went, however.
I began taking Glucosimine to ward off trouble. I also used a heating pad for my lower back which would REALLY ACHE at times. I got a massager for my car seat. That helped A LOT because it also had HEAT.
I began a walking program which helped me lose 80 pounds in 2007. I felt pretty good but needed to take Ibuprofen before I walked and needed to ICE and rest afterwards.
In September of that same year I was on vacation and taking an evening walk. I stepped off the curb and felt a POP in the back of my right knee.
One thing led to another, and pretty soon I was feeling pain in other parts of my knee, my back, etc.
Physical therapy didn't help and actually made things worse. Also my 99 year old mother came to live with us for two years which produced GREAT RESPONSIBILITY, little sleep, and MUCH STRESS.
It was during this time in 2011 and 2012 that the osteoarthritis hit with a vengeance. I think the stress, the little sleep, me being older (60), etc. really were the straws that broke the camel's back, so to speak, for me.
Cortisone shots worked for four DAYS.
My insurance wouldn't pay for the Ortho-Disc shots.
I was TOTALLY FRUSTRATED, very upset, and IN DENIAL about everything.
I started to think that wheelchairs and scooters were my future.
One morning I woke to HORRENDOUS pain in my OTHER KNEE! I was unable to put any weight on my leg. I was using crutches. It was Memorial Day Weekend, so I had to wait several days until Tuesday when I could call my doctor.
Long story short...got X-RAYS, bone-on-bone, no cartilage left. Doc said I needed TOTAL KNEE REPLACEMENTS on both knees.
I was shocked at how bad my knees had got in just four years. I booked my first knee surgery before I left the office.
I will be getting my SECOND KNEE done in six weeks. My first knee is nine weeks post op.
Surgery was the best thing I did. I will have OTHER PAIN, but at least my two knees will feel better.
Don't be afraid of surgery. Sometimes it can be the only thing that helps the PAIN.
I wish you a pain-free time!
noplaybarbie cheryl90571
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cheryl90571 noplaybarbie
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It is hard to find time for yourself, and sleep is usually interrupted as well. Bad combination because depression sets in quickly.
I had pretty much decided the PAIN, the poor walking ability, the stiffness, trouble doing pretty much EVERYTHING I was used to doing was my lot in life.
Mom passed away 25 days shy of age 101. It took awhile to get used to having time for ME. I still was dragging my feet on any surgery UNTIL I had horrible pain in my GOOD KNEE one morning. That led to seeing my doctor after a four-year break. X-RAYS were SCARY-BAD! I scheduled surgery before leaving the office that day.
Your time will come for YOU.
I hope things work out that you can get relief very soon.
Pain, not being able to do things you are USED to doing, and feeling hopeless is NOT a fun way to live.
I sure do feel for you because I once was RIGHT THERE!
Take care!
Please keep in touch!
noplaybarbie cheryl90571
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Barb
CelsB noplaybarbie
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I am the youngest child (67) of parents who were both arthritic but my brother and sister seem to have escaped it. Just the luck of the draw I suppose.
It's good to come on here and have a rant to people who have some understanding of what you are going though. I hope you manage to get the best help you can xxx
noplaybarbie CelsB
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elizabeth20203 noplaybarbie
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I hope you find a way of coping.
Best wishes.
Elizabeth.
noplaybarbie elizabeth20203
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Ellie1943 noplaybarbie
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noplaybarbie Ellie1943
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Ellie1943 noplaybarbie
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noplaybarbie Ellie1943
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amber73255 noplaybarbie
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lyn65518 amber73255
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