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I am 67 female. I lived with pain for over a year with gallstones, which I am sure caused pain in my pancreas. Then in April 2015 I had a colonoscopy expelling with Picolax nothing but 12 hours of yellow dirrhea. All OK. I was diagnosed with severe colonic transit time (since loadds of flaming meds but worse with gallstones) and on laxatives. Then April 2015 had gallbladder out and it all got bad since. If I passed a motion the burning would spread all up mt back lasting hours. Anyway my abdomen was so disstended a FODMAP diet made little different and I would drink loads ofwater but hardly pee standing up, but pee all night or after layin down a while. The bowel consultant noted this, even the fact with a catheter in standing my bag would hardly fill, but gallons laying down and the pain,. I was discharged he said maybe your bowels press on bladder. I did not have a prolapsed womb. I have lived with this. Then I got pancreatitis. An MRi showed all looked OK discharged, with no advice as to diet. I continued to eat the worst things cakes doughnuts nuts etc. Anyway, I tried low fat after research. No difference. I can eat any cereal and feel OK for about one and half hours. Then burning in my guts especially back and throat. It will die down but my abdomen swells then. Ecven with 6 grapes, a banana, a yoghurt, anything it will burn in my guts bwtween my shoulders. By 2.oo pm the burning id=s continuous and my bowels burn too. If I do pass a fatty small stool (afyer tonnes of laxatives which hardly work) the pain is all up my whole insides like fire. I am usually disabled by p.m. and go to bed crying. I also get pain if I dont eat. PPIs do notjing. Even laxatives and medicstion burns my guts. A banana at 6.00 p.m. awful. And such sweats. I cannot eat bread as it binds me up so do eggs. I am waiting for a 24 hr manometry and a Ct scan again and hopefully an ERCP. as on seeing a third gastroenterologist he said your blloods are reassuring still and for him an OK MRI of tje di=ucts etc meant nothing until we "get down inside". One man refused to do this procedure. I just do not understand what is going on any more, I lost a llot of weight before pancreatitis. A blood IGG4 was OK. Then I got low plates and put on steroids which put some weight on but now I still look like a wrinkled prune of 97 not 67. seem to crave carbs and fas. Another problem is Icannot take non steroid anti inflamatories pain killder ss I doubl up with gut pain and then cannot pass urine and end up on catheters. then I eat fine but end up with haematuria and such pressure now especially last meal in my rightback like Im going to explode. Nothing helps the pain. Even oral morphine I was crippled with and vomitted and couldnt pass urine. All Im told is I am a medical mystery and in my mind and women get these things and as I havee a depression history it is that but my kids and family have never seen me in such pain, worse third meal small or medium. Usually very tiny. The burning inn my abdomen is awful too. My mouth is coatted furry and I am so thirsty. Even Lactulose burns in my back. All sugars all fats. And I used to get sweats and palpitations but they arenot as frequent as my bowels are not evacuating even my veg!! I get a sensation of ringing in my ears. I am off steroids. The only thing that ever eased pain was antibiotics. I am trying to avoid any carbs sugars fats noe even milk but am stuck as to know what to have for breakfast. as porridge all cereals burns, and fruit and eggs bind me. A salad at breakfast is so depressiong. I have lived with this over a year and considered ending my life as I do not have what I had before, do not get out because of pain, and cannot even have a cucup of tea or coffee. I know I do not help myself as some days I have got so down I have felt if I am dying then blow I am going to eat three doughnuts or 4 custard tarts, or a bag of popcorn. I do and feel OK...until an hour half later, and then it goes on all day from my backside right up to my back my chest my throat. The pain usually goes in the night although I rarely sleep.I am never tired!! So GP tried Pregabalin as I seem to cry soon after digesting as moods affected. Felt awful on it. Amytriptine as bad such lower back pain horrendous sweats and felt I had been punched in the face. Now I am stuck in bed with bursitis in my hip and if pets could talk they would be telling the GPs consultants a thing or two. They know I am poorly as they wont leave me alone.!! I pray the manometry etc shows something. My GP tried Creon. Even they burnt my guts. I do have also gastitis a hiatus hernia motility of oesophagus and what they think is stomach emptying too quick. But if so why pain all up my back chest on passing a fatty stool and why pain worse by 3rd meal at night. I hope to God someone will find out.
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