Severe Pain don't know how much longer I can cope 😓

It’s so hard I know from when I’m a lot of pain.unfortunately for us no one else knows what it is like. They make assumptions and to please them we tend to do what they want then suffer in silence later.

I don’t know how to help. I can only tell you how I try to cope. I try to keep busy, which isn’t easy. Have you family. Are they helpful. How are your children coping. Are they helpful at all.

Is there anything you can lose yourself in. I paint. I read. I go for coffee with good friends I normally volunteer and do stuff for others. Seeing consultant wednesdayand mri beforehand. I do really sympathise and wish I could help you break the pain you are suffering.

Hi sabsy,

Please disregard my first reply - I apologize, it was sent inadvertently before I was even finished writing and putting my thoughts together, and it won't make any sense.  . So, I'll try to make the adjustments here. If you are having trouble standing, has any orthopedic doctor recommended a hip(s) replacement? I realize you are young, but the hip replacement nowadays is the easiest and quickest recovery time compared to all the other replacement surgeries. I know that's still not an easy thing to face, though, and you would need some help with physio therapy, but again compared to the rest of your life, it would be a relative short therapy time. If you are able to stand and walk with comfort again, your spine will feel much better providing you don't have a bulging or ruptured disc.  My other question is do you have a good doctor who understands OA?  They may have advice on anti inflammatories to mitigate pain in the diseased hip. The depression and fatigue you describe is something that happens to us when we are in that much pain, but I would avoid anti depressants. Our bodies can be tired from fighting pain and depression can result in dealing with every day and years in your case.  I understand and am in the same fight, only with an arthritic shoulder for 4 years, and there area very few people who have arthritic shoulders. I feel for you with being a mum and having these difficulties and hope your doctor is helping to guide you to the best answers.  I hope you get the help you need - you also can write to me anytime. Again, I apologize for the first reply and I franticly tried to delete and/or edit after it was already published.  

Hi Sabsy,

I replied with a 2nd post ( the post which should also be showing) and moderator has not approved it?  Instead, the first reply, which inadvertently was sent while I was away from computer is still showing. This forum needs a way to preview a reply before it's sent. Unfortunately, you didn't receive the reply I intended!  

What country are you in? Who is fobbing you off?

go see a different surgeon, I use to have lots of pain with OA but surgery cured all that for me. They need to do X-rays and sometimes MRI to see what is going on, without that anyone is working blind 

Hallo Saby is it ok to call you that? I am guessing you are in the uk. That’s important to know as other countries have different health systems. Do you have family or friends who can help? If not there is an organisation within the nhs you can talk to. It’s called Pals.

I hope the fact that two of us responded to your call for help gives you hope that things can and could be better.

Hallo again. I just reread your other post

And realised you’d had fusion. Where was it as I too am fused, but still walking, just. Seeing the surgeon tomorrow. So....how long since your fusion. My first was about 2011 elongated in 2013followed by rhizolysis ( Rfa) twice a year apart, last in 2015.