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I am 32 years old & have had CFS/ME since 2006. I was essentially bedridden for all of 2007 & most of 2008. I then saw some minimal improvement, enough that allowed me to perform at low-level physically demanding jobs. I'm going to skip the decade that followed because I'm sure most of you know exactly how it went. Present day, I'm a Father of an 18m little boy, a home owner, & have a desk job that is incredibly conducive to my (secret - employer is unaware) illness. About as good of a life as anyone with CFS/ME could ask for.
Well, since Xmas-2017 I have taken a severe turn for the worse, & I'm feeling very lost, alone, & defeated.. Almost to the point where I want to give up completely. On Xmas night, I indulged in alcohol more than i had in years (20ish beers - up until 4am). I don't know what else to say about that besides I just let it all go. I have avoided alcohol almost entirely for the past decade via this illness but I just needed the release that night. Man, am i paying for it since. I woke up with a very strange pain under my jawline that ran back, all the way down my neck. The muscles that hurt me are best identified for you guys as if you were trying to such something through a clogged straw, all the way down the back of my neck. I have also developed unexplained chronic diarrhea. Not exaggerating, I am going #2 almost 30 times per day - pure liquid. I have a lot of blood built up in my sinuses, an insane amount of sinus drainage & of course all of the other wonderful & common symptoms of CFS/ME.
Can anyone advise me? Can anyone provide their own similar experiences? Can anyone simply provide personal support via text on this thread? I just feel utterly alone.. None of the people closest to me in my life have ever understood but i always just accepted that fact & dealt with it the best i could & carried on. Well, not doing so well this time. As all of you with CFS/ME know, life can't, & doesn't just stop when something like this goes wrong for you. I have a little boy who depends on me.. But i tell you, with things going like this, i won't be able to do any of it.
Anything anyone could say to me that has CFS/ME would help right now, TY...
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