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I’ve been really putting off posting about this – I find it such a difficult topic to discuss but I've looked everywhere and it just doesn't seem to be something anyone's talking about. Anyway, it’s gotten to the point now where I could really do with hearing how other people cope with the effect of chronic fatigue on their sex lives!
I’m 28 years old and have been with my boyfriend for nearly 11 years, I’ve had CFS for just over a year and a half and in that time it’s had a huge impact on my relationship, particularly the sexual side. I was just wondering to what extent other people have an issue with the sexual side of their relationships and how they deal with that.
First of all, I have found that my libido has decreased to almost nothing – I do really miss intimacy but, in all honesty, it’s not something I look forward to anymore because it makes me feel so unwell. I often find that I have to stop sex half-way through because I get dizzy, shaky or light-headed. My boyfriend has also said that he’s reluctant to initiate anything anymore because he doesn’t like the way we always have to stop or the way it can make me feel so unwell. So we’re at a point where we rarely have sex and it’s something I’m really struggling to come to terms with.
I’m also having a headache with contraception because I have been on microgynon 30 for almost 11 years but, on average, I forget 3 pills per pack… I would be more worried about pregnancy if sex was a regular thing but at this point I feel like I’m taking tables for no reason but I’m also aware that in the rare event that we do have sex I’m not as protected as I would like to be because I keep forgetting to take them. My GP recommended the implant, injection and the hormonal and copper coil but I’m scared of change at this point because I’m struggling with the impact of CFS on my health and don’t want to risk some of the quite unpleasant side effects there’s a chance of experiencing whilst also having to deal with CFS. I’ve been tempted to come off the pill altogether and just use barrier methods but my GP advised against this – so I’m really at a loss for what to do and really don’t know who to talk to about this – I feel really stupid but I’m finding all of this really overwhelming and upsetting!
Anyway, thanks for listening and I’d love to hear your experiences or any thoughts you have on this!
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