Sexually Aquired Reactive Arthritis

I am negative also. You can get better I recon if you show signs of improvement. I would keep excercising light and avoid injury if possible. I recon hydrotherapy is pretty safe for tight muscles. When I got the core working it was really sore stomache that night. Then I got diareah . It was like I started to get better from excercising. To be honest it felt like I was sh*tting out the illness from memory lmao. I had really bad sacroillitis and IBS. I think if you stay still it made it worse and doing excercise in a pool really helped a few days later though. I recon I could possibly have fobromyalgia as well. I was diognosed with reactive arthritis 5 years ago. recently I got a second opinion of primary reactive arthritis and secondary fibromyalgia. I am not sure if I have fibro or its still the reactive arthritis

Thanks for replying.. 

Do you know that during the research i did, i read that Columbus Christopher died from Reactive arthritis caused by food poisoning. 

Why haven't we found a proper cure for this in over 500 Years?? lol 

I do get improving, but then there are weeks where it flares up a bit more. 

Anyway will see how it goes. 

Yes go figure. Have you tried tnf blockers?

Prednisone? What antibiotics?

I try all the antibiotics, cipro z pack, flagyl, doxy...nothing helped except flagyl

I've taken prednisone and that made things worse.

My next step is to try getting my hands on tnf blockers.

Do any of you have spine pain or symptoms of ankylosing spondylitis?

ReA can manifest into AS?

Hi Vincent, 

I had Antibiotics at the beginning of the onset of this condition to get rid of the infection i had. 

After that was Steroids for 3 weeks. 

then anti inflammatory. 

But the other day i read about this particular trial done in USA as a cure for Re-A 

have a look.

https://www.sciencedaily.com/releases/2010/04/100429082355.htm

What bacteria was it? Which antibiotics did you take?

In my case I don't have Chlamydia. Matter of fact all my urine culture have been negative. They're not sure what the issue in my is. 

After steroids what happen? Did ReA come back?

Have you tried Tumeric with black pepper?

 

Last two years I've taken doxy for 5 weeks and intermiddent but no improvement. 

Doxy does not do the trick for me. However, Flagyl does. But does not put the bacteria in remission.

I am thinking about trying Triemthoprim and Doxy. 

I hope they find a cure would be a fantastic break. The one thing I hate about this disease is the fact that everyday can feel like a monday. If I got cured Id be like Bruce Lee inside bahaaha. I use to be an athletic person that loved sport. I would do anything to do boxing, rugby union and cricket again. I just couldn't imagine how many people would benifit from a cure especially the people who go on to suffer other illnesses from getting this one. I recon there are far worse in life even though this ReA is very brutal. I just know cos I got mate with epelepsy. He got sick at the same time as myself. We are like brothers before we got sick and even tighter when we got sick. I would much rather have ReA than epelepsy even though I can be more crippled at times. He can die from seasure and was having like 7 minute seazures every couple of weeks and it was horrible to look at. I don't cry much but I shed a tear the first time I saw his seazure. Its brutal, he cant walk for days after. He said its like running a triathlete 10 times over. The exhaustian and tiredness is bad.  SO in the back of my mind I try to look at the things that are positive in life. Not sayn that you shouldnt try to get better but don't let this illness ruin your life and do as much as you can while you can. Its probably the best advice with this illness. Do everything fun cos pain is not fun. SO the more fun the more you will feel better. easier said than done but there are a realm of possiblities of what caused or what can cure this illness Just make sure you live life too cos if you have it for 20 -30 years atleast you can say you still lived life. Cause you can, you just need to make the right adjustments. In the 10 years ive had this disease I would say 30% was great, 40% was ok and 30 % was hell. SO when you look at that compared to other disease we are lucky in that respect. I guess you have a good chance of improvement and less chance of death than other autoimmune. I know a girl who went blind and deaf and had cortisone injections to see and hear again. I mean that sounds way more scarey. But yeh Bring on the cures. Are any of you guys got medical background or related?

how long did you take Flagyl for? Did your symptoms get worse after you stop, if so how long till they returned. Thats interesting because your probably right about trying it but the rhuemy recons no it can make you worse. Did your symptoms get worse after the anti biotics?

Nice to hear from you Jay!

What hillness did the girl who went blind and def had?

Just Curious... 

 

Flagyl really helps keep the painful arthritis away. however if I stop flagyl despite me taking it for months or weeks everything returns. All my symptoms return. 

Doc think its anti inflamattory of Flagyl helping, but heck it helps lot more than Advil or Aleve at high doseage. 

There is no going back this is what doc is saying. What I really think is there is a hidden infection somewhere constantly provoking Immune response. I don't think medical is interested in figureing out those infection. 

You won't go blind of def from this illeness unless you have uvitits. That you need to treat. 

I suggest everyone visit there doctors every 6 months. For instance...go see your eye doc ever 6 months, go see rehummy, go see ID doc...

Matter of fact there is nothing they can do for you besides give you pain killers. Most doc are not interested in Antibiotics treatment. 

I don't know what its called but it started from a cold. its an autoimmune. She woke up next morning after a cold started and infection in the throat I believe. It sounded really scarey and dreadfull. She recovered but I think it reoccurs and she gets more medication and shots.  but geese it sounds scarey to have to get cortisone injection into your ear. I was scared just having it put into my shoudler joint. To be honest go to good practitioner for steroid injections. Mine went really smooth and the doctor was a top bloke and reassured me the injection will go smoothly. He does all the top athletes and is why I went to him. I am now changing my physio to the best. I am losing lots of money but I think the better chance of recovery with the best doctors. My last physio helped me tear my labrel by telling me to do strength excercises. The physio caused me to need surgery. He told me to do more strength excercises after I had a small tear the day before. I now have a massive tear from 4 oclock to 7 a clock over the top of my arm. I know for fact it happended from the excercises the physio gave me tore it more. Moral of my lengthy stories is that fact that you will need to make some big decisions sometimes. Go to people who listen to you

 I dont trust all medicine which is a shame. Just seems like I am a test dummy. I didnt like Lyrica at all. My eyes started moving quick and dizzy like. I stopped after 2 weeks. never noticed anything exept feeling high. It actually felt good lol I didnt want to risk taking them any longer. Yeh only celebrex and naopraxeen helped for me.other antiinflamatories dont even work like. I had a theory that possibly I got better from AS(sacroilitis) and I still have ReA and fibro or just fibro. Its so hard to know lol

When you take Flagyl does it get rid of every single symptoms. Are you cured or just some of the pain. My anit inflamatoreis never took it completley. They just made me so much better. I think when I got to a certain point I plateued. I have been on that plateue going up and down like yo yo. I never get bad as I originally was but my new shoulkder injury seems to be provoking it further, But like I said I was way worse before I ever took antiinflamatory. I was convinced it is my own immune system for the last few years but sometimes I question if I have a bacteria. Anything is possible

Jay - are you in US?

Are you HLA- B27 neg?

I really think me and you are going through same process. Do you know how rare that is?

This illness is a very rare medical syndrome. That is why no one really seems to know much about.

How long have you been ill? Have they excluded wegner gran?

How do you pay your medical bills? What type of job do you have?

There is not much we can do once it is trigger. Most doctors do not care to check for any other infection once they have excluded most things. 

Now what? I don't know

How is your urethritis, do you still have symptoms?

Like something is crawling?

 

I am in Australia

Yes I am HLA-B27 neg

Yes very rare I am probably should have bought a lotto ticket Its very rare and I don’t know anyone who has it. I only know people with rheumatoid Arthritis

I think its very hard to deal with because its even hard for the patient to understand what the hell is going on, so this must be why the medical system cannot really deal with people like us properly. My illness is invisible to others. The only things I have had visible are Balantis(red penis tip and sore) lasted a few months. Itchy red skin but moistly on my shins(comes only when I was chronic), muscle twitching. Otherwise most of the time its invisible besides Mri finding of sacroillitis. My pain is totally invisivble with so real sigbns of swellings. Its so strange.

I have been ill for 7-10 years first 3 were very mild I didn’t know but I knew something was different.

wegner gran? What is this ? I will have a look into it.

medical bills can be costly. I was broke as hell and I went untreated for a long time when I was unemployed for one year. My friends sometimes helped me or girlfriend. Australia has some health care assistance but not much for specialists. I get like 70$ back from $250 visits. I do desk job in designing. I wouldn’t be able to labour or do anything to physical for a job. I would be injured all the time with stiff neck or back. I could do physical job if I didn’;t flare up. So I do desk job because its easier to keep my job if I strain my muscles or injure myself.

I finished my studies before I went back to work. It was honestly difficult to deal with and I wasn't in the right state of mind to be social at that time. I was very anxious about my illness and at times still am. This is why I state your mind can help you get better or make you get worse. Either way healthy activies that do not stress youyr symptoms. But some symtoms are relentless at times and is when you need to find things to do that make you happy. Sometimes I just play the xbox or try to read a book, or sketch. I just try to use my mind more doing positive things. I go to read a book and I get pain so I just do little bits at a time if I am feeling real bad. I try my best not to let the illness control me. You definatley need to adjust your lifes attitude to be contempt with the symptoms you have. Because I have drastically changed the activies I enjoy doing I do not miss out on life. Sometimes there a disapointments that set you back where you cannot play sport. But one day you may be able to but until then I need to just do other things in life., Sometimes it can open your eyes to a whole new life of activies. I am always looking to find new things to learn now., I never use to be like this but people change to adapt into their new future. Nothing stays bad and you will generally learn to deal with it. I never thought I would have made it this far after 7 years. In mt first year chronic I thought I would nbever be able to do anything again. I thought I would be like that for life but I wasn't.  it is a roller coaster ride. At the moment I don;'t think I will ever be able to use my shoulder again, but I bet the illness is attacking again and one day it will settle down. I just try not to worry about it cause it only makes it worse. Stress makes muscles tighter I beleieve

Jay, I can't believe your going through this for last 7 to 10 years. Isn't this depressing that you and me now are dealing with this forever and nothing seems to help.

We are suffering from chronic ReA. 

How is your heart? Any issues with palpitation?

My ReA is so bad that i will flare every few weeks. Few days will be bad and really bad and then I feel fine for few days then back to square one. 

I take Doxy & Flagyl everyday and nothing seems to really help. Now I will start taking Prendisone just for flare up for quick time for flares. 

What do you take for flares?

How about your eyes? Heart? Any issues? Hip pain?

This disease has made me sad. Very sad. If you don't mind me asking, how old are you? 

I'm 32. 

Thanks 

 

What antibiotics, specially have you taken?

I am 33, I got it bad when I was about 27 when a physio pushed on my spine. I had it prior for a few years but never knew.

Heart palpitations. Yes. You just made me remember in my early stages first 3 years milder re occurring problems that didn’t last long. I was in London after I had Chlamydia say 1 year. I was working for a large company when suddenly I got hit hard with sudden pain in chest, dizzy like feelings. I was out of sorts for a few days. I went to the hospital but I had to walk like 2 hours because I was on my own (was difficult to walk and felt fatigue. I got to the hospital and they checked me and said I had heart palpitations. They sent me to the larger more equipped hospital and tested me. A erratic doctor explained to me your way to young to have heart problems and that I look so healthy. They found a black mark around my heart in an xray. She said its probably just something in your lung. I was like whatever and thought what a bad doctor she seemed lol. I know lots of people who have heart troubles in their 20s . Anyway she gave me tablets and I left. I never checked for my heart since. Maybe I should now that you reminded me of this.

My eyes seem fine but sometimes they have been itchy,. . I use to have a lot of hip pain but my lower back symptoms are much better now. I have had pain in all my body at some point or another. I have even had sparkling pain. Do you get sparkling sometimes? I noticed crawling last night. It was inside my genital and went away in like 10 seconds to never return. This is why I don’t notice alot of my symptoms. Some come and go as they please. The faster they go the better So do not think about it too much otherwise your mind may progress it if you think about it too much. When you forget about things is when they disappear anyway. Have you noticed that?  

Do you always have constant pain also. The strains are more severe though because I lose mobility and extreme stiffness. I always have some stiffness and pain but not like the strains. Do you suddenly pull your neck and get stiff?

You sound similar in that it comes and goes when it wants. Mine seems to last a long time. usually at least a month usually 6 months to a year. I have had mild pain the whole time though no matter what. I have constant mild pain now with sudden stabbing pains sometimes.  It is difficult for me and I need more help sometimes. I don't usually get it because I am not understood . Most people who treat me have progressed my illness. Like physio-therapists who pushed on my spine. Mine got really bad when I went to a physio so be careful of them pushing on your spine.

 I was more angry than sad. I have a terrible temper from the way I was treated when I got ill. People did not believe me and some even attacked me verbally or physically about it. I lost a few friends and family but I am glad now because they ridiculed me for my illness.  I at times wonder how others cope with others treatment of not believing the extent of our illness.  I really hope that your symptoms begin to settle. It is very tough having a few good days and then getting so bad suddenly. I know the torture of always believing your getting better then back to square one. This is the hardest part of this illness that I don't think anyone could truly understand unless they have it. It is torture to your mind sometimes with many disappointments. It is a very disappointing illness where it gives you false hopes and then ‘boom’ hits you again. Like I said you should have your symptoms lesson or one day they just disappear 4ever hopefully. Until then we need to still live the best life possible. I understand it is easier said than done because I have fallen down many pitfalls in the last 7 years. I realise the happier you are when you get pain, the memories are always better. Do your best to move towards happiness for the future of your memories. I have some very dull years because I was so sad and argumentative. I argued with everyone about my illness. The pain just makes you sad or angry because you lose just about everything you use to know and no one understands it. If you avoid being sad or angry about it and find something enjoyable or new in life it can give you more meaning in life. Its tough but you have to be as open minded about it until you recover for the sake of your memories. I look back and wish I knew earlier that my mind was a big part of dealing with it. Try to meditate because it will help you when you are at your worste. It helped me a lot in the first few years cope with the pain. Try to focus on your breathe. tai chi or mediation can help a lot. mediation cured my pain briefly. meditate for 1 hour and you will feel 50 percent better most of the time. have you meditated at all? if so what were your outcomes

azithromycin. Thats it I think . I took it a couple of years later cause I was convinced I caught an STD. It was the ReA again giving me burning symptoms after I drank alcohole again. I couldnt drink alcohole for a couple of years. Mainly because I was so scared it would cause a flare -up. I would advise giving up alcohole for good. This I recon had a part in progressing it or causing it. Alcohole causes inflamation and possibly caused a chemical reaction from what I remember. I got an aura like feeling when I drank, then got burning in my neck.

It is understandable that you are sad after what you have been through. It was very tough, especially in the first few years. So make sure you hold your head mate. Just remember you have your life ahead of you still, it just takes time. I am still adjusting when I have new flare-ups .we may just get completely better one day like other people with ReA. I recon they will have a cure in our lifetime or better treatments. They found another potential cure for cancer which can possibly cure tumors etc. today in the newspaper. Science and technology gets faster and faster. They learning new stuff everyday. I don't have faith in everything but sometimes they do cure things which is fantastic but it may be a few years. Also if it is a bacteria they may find new ones that have been overlooked. It is hard to say how long we will be ill for but most people do get better from ReA i hear. If your symptoms come and go so quickly mabey something is triggering it like food or chemicals in shampoo. Its a long shot. Have you heard of salicylates? I noticed I am intolerent to foods and I sweat alot sometimes. Possible intolerence that we could have is another possibility ? I am going to a dietitian this week to get tested

'Thanks' to Re-A i have given up smoking altogether. I have been a smoker for 20 Years. and 2 weeks ago, i said: if i give up the fags, sure i will get better. 

I actually did. 

Anyways, i am staying off anti-inflammatory at the moment cause my pains aren't so bad, unless i starting doing some kind of physical effort, as in playing the drums or running for too long. 

Funny how my rheumatologist thinks i am going towards full remission of this. I am not so sure. 

 

Will see what happens in the next few days. 

As Jay says looking at food test is a good one. 

Getting sad at times it's normal. But we got to accept and keep fighting to get better and better. 

Have you guys read the link on one of my previous posts about a possible cure using 2 specific Antibiotics?

Which Antibiotics?

Jay,

I really think its bacterial infection causing cosntent immune reaction. 

Did you have more urine test?

Do you take prednisone?

I don't know I just feel bad every few weeks I'll get intense flare up and then it will go away then it will come back. 

The burning joints, pain in the eye, headaches, hip pain, heart, organ pain all this gets to you after a while.

You get sad because you see everyone else staying health and eating right and living there life. 

Ok Lads, please Google below! It nearly explains everything: 

Increased understanding of the biology and survival tactics of Chlamydia trachomatis is suggesting that the post-infectious chronic arthritis experienced by many patients may actually be curable.

Emis Moderator comment: I have removed the article that was pasted in full here as it may breach other website's copyright. Please do not paste whole articles in posts. You can exchang links if required via the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

I use to get  pain in organs most has gone away. You may be gluten intolerent also or cant eat certain foods until you get better. I couldnt eat bread, drink milk, alcohole, etc. I cant drink coke zero or softdrinks at all. I felt like I had Crohn's disease.

I only take celbrex at the moment for about a week. I got cotisone injection in shoulder which has helped. I still think my shoulder is not healing because of illness. It seems to be reacting to my labrel tear. Im nervous about getting surgery with my illness. I dont know if its the labrel tear and if I need surgery .  this illness can be tricky. 

 My mate got a bacteria too, he now has epelepsy to this day. It seems as though if they find a cure it may cure a lot of people.

It is sad and I cannot deny that, but believe me you will start to improve eventually or learn to get by. It took me over 3 years just to get back to work. I still stuggle now but not like I use to. It is getting pretty close though cause of my shoulder. ReA seems to really attack me cause of my shoulder dislocation. Its really painfull and I cant really use it much. I have lost so much muscle and is disapointing. To be honest I will one day recover hopefully from my shoulder. It definatley sucks to not be 100 percent healthy but I definatley dont think about what other people can do, it just upsets me. Try not to think like that because it will make you worse. some people at work, even though they are my friends laugh about my illness. They really think I over react. I ussually dont handle it too well deep down. It hurts because I know how much sufferring I have been through. I guess only if they knew they might not laugh about it. I can't get mad at people anymore, its just because most adults are big childeren. Or their the tough guy. To be honest it makes me laugh at how everyone thinks their injury is worse. I just agree with them, that they are way worse off people would never understand anyway. I try not tot tell people about my illness now, but its hard sometimes when you cant make it to work.

only if my infection was cause by C. trachomatis or any of its family. 

No STD detected. What i have is non std bacteria. 

I have had numerous urine tests but never had a stoole sample. Do they cure people years later from bacteria infection? I might ask for a stoole sample cause you never know.

I have had cortisone shot but I do not take predisone. I am going to the second opinion tommorrow. seeing a rhuemy to see if they believe it might be fibromyalgia stopping my shoulder from healing and causing the pain or complications. I need to be sure about surgery. This SLAP tear feels similar to my ReA symptoms. I am worried its both because I have pain when not even using my arm.

Jay, I'm very much interested to know do you have prostate pain? And burning or stinging feeling??

Rea does cause shoulder issues....and pai...it's more of muscle pain...it's not fibro...

One way to test if it is fibro or Rea is to take oral steroids..

If pain goes away then it's inflammatory...if muscle pain persist then it's muscle pain..

Jay, when you see your doc plz ask them to give you

1g of a Zithromax and 500mg twice a day for 7 days flagyl.

I really think since you are chlamydia induce arthritis there may be hidden bug that attach to cell.

I really think Rea goes away once the triggering event is remove.

Also ask them for doxy 100mg twice a day for 7 days.

This way you are 100 % sure that your chlamydia and associate pathogens are clear....if u feel better in few weeks then u know you had other pathogen.

spine when someone grabbed my neck. Then I got a stiff neck. Its either that or my immune system reacting to a possible threat. I know other people have their neck pushed on or grabbed and their fine. I wonder why this triggered a response. Must of been the fact I had Chlamydia at the time. I always wonder if it somehow crossed over into other parts of my system.

** add this to previous message it didn't post properly

I will try for 7 days to see.

Do you think it was possible to have the Chlamydia pushed into my system and not be detected? It actually felt like a lightning bolt down my

I get stinging itchy feeling in penis sometimes. It lasts until I scratch it. Happens every now and then, ussually at night very mild. I hate it cause its embarressing to scratch in front of  gf. I dont know what prostate pain is but mabey. Is it like tight balls if so I get it mild now

Chronic bacterial prostatitis . have you read about this. Sounds similar to what you may be getting. I am not sure but you obviously came in contact with a bacteria or you may have had an unusual reaction. Its hard to tell but I have reacted to sexual contact even when I didnt have chlamydia anymore

Jay,

I know its CBP. I just don't know which bacteria. There has to be a bacterial trigger that is still in my prostate. Until I get rid of that I doubt my Arthritis will be cure. 

What did your doc say in your last appt? How did that go? Do you have any Hip Pain /Stiffness?

How do you get rid of hip issues, I have bad stiffness for last week. 

Yeh I had hip pain in the morning and stiffness today but very mild. This was mostly my sacroilliac joints I think. I got Iliopsoas Muscle pain. It was everywhere. My diaphram and chest. I had to stretch all the time but did little good. When I was at the chronic stage like I said pain was pretty much everywhere. Hips, legs, spine, lower upper, sparkling even on the top of my head. I couldnt count the different symptoms and areas. A million different combinations of pain and stiffness. Was like a circus of pain and symptoms. It was just going haywhire when I was real bad. I still have pain everywhere but not like before when I first flared up bad. My whole body felt 160 years old. My grandpa could do more than me and it was torture being basically crippled. I am in a much better position now 10 years later. I can still manage a life in mild to moderate pain. Sometimes I struggle but we can only do our best. I get bad headaches which are bad. I never go too much genital problems except for last year for a few months

Doctor said I need surgery. I have booked in with a surgeon for my 4th opinion. He will do my surgery because he is one of the best around. I am going to sell my motorbike to pay for it which sucks. I will just buy another later. On the motorbike topic, I had to buy sport tourer because sports bikes hurt my back too much. When I first had the illness bad I would have thought I would ever ride a motorbike again. I now ride even though I still have ReA. It just shows how much better I am than I use to be. Sometimes I have to pullover to stretch. The strange thing is the more I sat through pain the faster I got better because I was sitting again. I needed anti inflamatory though. Its still annoying but nothing like it was. So life does get better, just takes time for some, or comes back for some. If this illness was to stay chronic at high pain and bad symptoms. I couldnt imagine life again like that. It was so hard. Its still hard. But it was so much harder. So I would say that you should start to feel better with time. I know it sucks. Have you tried celebrex? The pain was hard to stop. only antiinflamatory. my headaches would go away from panadol(light pain killer). I couldnt stop the pain, but accupuncture and walking. massage can help but I found it a waiste of money. Accupuncture without the needles helped me most besides anti inflamatories. Then try to to do light strength excercises to get the blood pumping. This is what helped me. Skipping. Then once I can get the intensity up. It will ussually be worse pain after but I would just feel good inside. Over time the pain started to go and over time realised it was making me better. That is pretty much all I could do. But it took a long time. You need to be sweating I believe to see any benefit. It hurts a lot at first. I get more pain when I stay still. Is this the same for you? although sometimes I cant walk for to long because sometimes groin hurts, or the knee

I dont think I have fibro. The rhuemy said I have responded very well to celebrex. she wants to try me on a heavier drug in 3 months. I think it might be immune supressor or tnf. I cant remeber what drug. Il have to ask about anti biotics too

Enthesitis is probably a good explanation of my biggest complaint with reactive arthritis. I believe this is all the straining I suffer from and sore joints when they recieve too much impact. or sometimes perform very little head movements and I strain my neck for months. I had sore wrists from boxing for about 3 months. For some reason I can box fine sometimes and not get injuries. Then other times I get stiff for months afterwards and cannot perform that activity for a long time. So be  careful and try to do low impact excercise.

For sure TNF will work. This is basically supressing your immne system from firing TNF signals. Of course this works, but doesn't stop the underlying problem which is causing the immune system in first place to immediate TNF cell. 

Does that make sense? How do we treat / cure the uderlying issues in which arthritis could be cured. 

F doctors all they do is make money. Most of them just don't care. 

As soon as you go off TNF your problems start right back again. Why? Because the underlying bacteria is still firing away. 

Yeh I have avoided  those drugs from doctors for so long because they don't cure. I am still confused about my arm. I am really hoping if I go through with surgery I do get better and it was the cause of my main issues. Can ReA cause labrel tears? I am just wondering because it caused so much tightness when I dislocated. If its not I will probably be totally screwed because if it is another problem the surgery would only make it worse. I am so confused although it is a really big tear from 7 to 4 o clock over the top of my arm. SLAP tear and happens to alot of athletes like baseball pitchers. My arm hurts even when picking up or moving my arm forwards sometimes. It has been twitching for a month on and off. I am going to another surgeon in a couple of weeks for a second shoulder surgeon opinion. He is really good and recieved the highest marks accross all surgical disciplines. If he says I need surgery that is like 5 opinions lol from ma few different disciplines. I will get it and atleast I will get the best surgeon to do it. I am so lucky my girlfriend made me get health cover otherwise I would be totally screwed. Public system takes years sometimes. I would say to get health cover if you can afford too. Even if you have pre existing for ReA you can be covered for other stuff  that could crop up. I never expected this shoulder dislocation to cost me so much money. I already capped my physiotherapy and is making me very broke combined with ReA. I have to do the physio. so I guess its worthe it in the long run. There are many hurdles in life but this shoulder injury has been so annoying and I havn't even had surgery yet. I was looking at the fact a lot of people do not recover from the labrel tear. Stupid shoulder joint is a sure way to make anyone broke or even the hip. I recon the labrel tear on the hip would be so bad. Atleast I can use my right arm. If it was your hip you wouldnt be walking I recon if its bad. get health cover for sure. I am looking into income protection now. I know I can't get it yet but atleast if I have future injuries I could be covered next time. I will miss 4-6 weeks work for surgery. I have no other choice but to take the opinion of 2 shoulder surgeons, 2 rhuemys and the opinion of a physio swayed towards surgery if I want to lift weights or whatever. I really need to do strength training because it makes me very happy and better with dealing with ReA

Yo. I just got approve for Humira. Doc called me and said come in for a trial and see if I like it.

I kinda a hesistated and pushed it back few weeks and want to try little bit more of antibiotics see if it works. 

I don't know but next month for sure I'll take the dam shot if nothing else seems to work. 

How  you feeling?

Hey Max...I am very much hopeful for this study..I also had the ReA symptoms began after a sexual encounter....had the first episode for 1-2month...but now after almost 1.5 yrs later it started again....I fear that it may be becoz of ct

just waiting on second opinion for shoulder speacialist, got a bout a week. Shoulder is stuffed but the injection helped alot

Alright listen up guys...

After must anticipated research in immune system and reactive arthritis - I have learn that you may still be harboring the triggering infection which is causing flare up.

Reactive arthritis is the only arthritis that is acceptable by rheumatic board that its initial inception is bacteria.

It's not any bacteria is it obligate interceullar organisim.

90% of the cause is chlamydia or mycoplasma. That leaves the rest of us 10% of us who remain symptomatic post 2 years.

You may be infected with multiple antibiotic resistent bug that hides in your urethra causing immune mediate reaction.

This reactive arthritis is Not and I repeat not an infection of joint.

The pain you feel is tnf protein your immune system creates to attack foreign substance.

You need to find a doctor who can culture the dam thing..

Do not take any antibiotics until u know the bug. These bacteria will multiple quick and become resistence.

Please don't settle until you take proper abx.

Jay, u need to stop taking shots. Reason u feel better is there giving u prednisone shots.

It's a temp fix.

Why don't u get humira?

Thanks

Oh and doctors don't really know much about reactive arthritis and they don't care.

They only gave me a shot cause I have a slap tear which I believe is making this TNF protien you talk about is getting worse from the shoulkder dislocation. When I rub my neck because it is sore it cracks and pops and stuff. It feels wierd and I wonder if I am damaging my spine when I rub my neck from side to side.

Il talk to my doctor about looking for bacteria. How do I find this bacteria besides urine tests is the question. I guess they would need to know what to test for because they only test for stds I think.

Whats proper abx? what kind of doctor can help me find bacteria because most don't want to test for bacteria

Hello Anon, How are you doing these days?