Share LS

Posted , 4 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi,

I am new here, but was recently diagnosed with LS. I want you ladies to be encouraged in every way to share this with your female friends and family. It's nothing to be ashamed of and could possibly save someone from it going into Vulvar Cancer. Please don't be ashamed. They don't know what causes it. I have told my friends and family about it. I encourage you to do the same. Just my opinion.

1 like, 9 replies

Report

9 Replies

  • Posted

    I agree.  However, I wish more doctors and specialists would also get on board and inform themselves.  I've had such contradictory advice.  The specialist says one thing, go back to referring dr. and s/he says, oh, no, don't do that! 

    Report
  • Posted

    Really no one knows about LS. There is know data or research what we all have in common. It makes you feel like you need to hide this. No one truly wants to talk about. Like no big deal. It is to us.
    Report
    • Posted

      It is a big deal absolutely! I just encourage you to share the symptoms with female friends and family if nothing else then to make them aware. I know they can't always sympathize with you, but you have us women here for that. Take heart dear Diana, you are not alone.

      God Bless!

      Marnie

      Report
  • Posted

    I think you are right, even though I have found this so hard to do.  I have one woman friend who I've told a little about it; and a couple of others to whom I have mentioned the name but with no further detail.  But noone knows the extent of the damage it's done to me or how serious it is.  I do agree with you but I wish I could do more to break through the 'shame' barrier (rubbish to feel like this but there's just this embarassment thing.)  Well done for posting, Marnie. 

    Report
    • Posted

      I can understand your feelings, it too may be a cultural thing. I live in Mississippi in the US and work in the health field, so I guess I feel responsible to share. I will be praying for you. I know it's a tough situation, but as we all share, maybe we can all come up with more ideas to fight it and make our lives easier. I am super fortunate that the first Physician I spoke with did a biopsy the first time I saw her, she did play around. I read a lot of articles to inform myself about the disease. Keep posting ladies!! we can all learn a lot from each other!

      God Bless.

      Report
  • Posted

    I agree marnie. I only told two people, and then one of them had itching and knew to go to the doctor rather than self-medicate for thrush. Result - she caught it early and isn't suffering as bad as those of us who went undiagnosed. That made me come out of my hole and tell a few people, then ask them to spread the word without it relating to me.

    Her doctor was also very aware of LS too. Young and female. Her doctor thought it could be as many as 1 in 50 women. If that's the case, why do so few docs know about it? Angry Rant!

    Report
    • Posted

      Hi Bridge,

      I'm so glad you chanced it and shared with another female. I am fortunate in that I have a sister who is a Radiation Therapist and when I told her about the itching, she told me to have it checked out.  I am not prone to any other female issues like thrush, so I went within two weeks for a check up. My physician immediately did the biopsy and let me know it wasn't cancer (in my mind I was worried sick as I thought I may have cancer) and treated it with the Clobetesol crème. I have had no issues since. I use it as directed by my physician. I am truly grateful for my aggressive Gynecologist indeed. I think there needs to be more information put out about it. In my mind it begins with those who have experienced it like you and me.

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up