Share your experience with Clob & Journey with LS

the things I have noticed using the clobatesol is it has really helped with the burning and itching which I didn't really itch that bad. I'm still super inflammed which I have been for 6 plus months. some days are worse than others. I have been using the cre for 3 months and yet to really see the light at the end of the tunnel!

my "journey" started 3 years ago - at the age of 66....IT started with a terrible itch...the kind of itch that if u started scratching u could make yourself bleed...my "V" was so dry (like the dessert)...I had just seen my OBGYN and he noticed or mentioned no change...a girlfriend of mine (leave it to our girlfriends) told me that she has had "V" issues and there was a specialist in Philadelphia (US) that she saw for some issues....took me 2 months to get an appt...he has actually been a specialist for LS for 27 years..he was amazing and told me I had LS (he said he could tell from just looking at me but did some testing also)...I am also post menopausal - the dryness is from lack of hormones and the white dry patches is the LS...he told me that I needed a hormone cream and the steroid and would have to be on them for the rest of my life...we spoke of the laser TX (Mona Lisa)...I started of the routine and within 2 weeks felt so much better...I saw him every 6 months for 2 years...after a year he said that the creams were doing a very good job and he did not think the laser (not covered under insurance) would really not make much more of a change than what I was doing...I must admit not happy that I am on these 2 medications BUT have to weigh the good with the not so good...in regard to flare ups...they happen occasionally...I also use some organic coconut oil and have found some good results from that...needless to say eating clean is always a good approach to feeling well...u will hear many different thoughts and results from people all over the world on this site...especially different ways to treat it BUT it is all about trial and error for someone's particular "situation"....the MOST important thing in my eyes to to find a doctor that is well versed in LS and do what they say...after all they r the ones with a medical degree - BUT - if what they say does not make sense and u do not see a positive change - then see SOMEONE ELSE!!! Good luck...

I forgot to tell ya...I use the clob twice a week - use the size of a pea - and rub into the area for about 20-30 seconds...I put on before I go to bed so it penetrates while I sleep....

just to add I totally agree with information given that is the routeen I have been following for the last 7 years I was diagnosed with LS when I was 53 . I also have bicarbinate of soda baths which really help half a cup in a shallow bath 3 x a week. I also use estriol cream from the Dr which helps apply daily very small amount. when applying the clob I have a warm bath then a pea size amount and rub in for a good 90 seconds this disease lives on the lower dermal layer.

all the best

Kay 🌻

i used clobfor about 6 months they had me on the ointment but it didnt do as good as the cream. but now i have lichen on my skin and its twiced as bad than down below . you talk about itching this stuff itches. They have me on 25 grams actien plus i found some lichen exe for the skin i use every night.

i used clobfor about 6 months they had me on the ointment but it didnt do as good as the cream. but now i have lichen on my skin and its twiced as bad than down below . you talk about itching this stuff itches. They have me on 25 grams actien plus i found some lichen exe for the skin i use every night.

I use the clob 2 times a week and the Estrace (hormone cream) 2 times a week with a "plunger" and topically 4 times a week...it works for me...but sure everyone is different....

I think it actually made things worse for me. The itching got worse and it got really sore down there. I even got blisters which I did not have prior to using the cream. Now looking for a more natural route as well as trying to get my stress levels down as I feel this has been a big factor with my LS

I was prescribed Clotrimazole for itching 5 years ago. Only symptom was night itch. I just thought it was part of life after 50. I kept telling the doc something was not right. i would use the steroid monthly and it became addicting. He never did a test and my V looked fine. Then i decided to stop the Clot/steroid. It was crazy itching. I noticed a patch on my V. Consulted a derm but was given the same RX. Its one year later and I have a new doc that did labs & confirmed LS. She wants me back on steroids to avoid progression /cancer. Steroid caused smelly urine, easy to fracture, sensation in my neck. Worried about Cushing's. New doc found a derm that may provide options....