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Hi all - here I go again! I felt I was doing quite well keeping the LS at bay with my twice weekly clobetasol applie a la Dr. Goldstein. I did seem to have one small problem area and in between applications this area a little itchy and irritated. To me it seemed like this area maybe needed an additional clob. application.
Then, Thursday last when I went for my annual visit, my gynechologist told me she suspected that the troublesome area was due to the fact that the clobetasol had thinned the skin there too much. I was shocked when she said she wanted me to 'take a rest' the clob only in that spot but continue it on the healthy skin. I asked how long a rest and she said to really try not to apply it there for three months! I was horrified as I thought it would become even more iitchy and sore. I had her repeat her instructions as I thought I had heard wrong! I said "what can I apply as an alternative? She once again stressed that Premarin twice weekly was the best as it would strengthen the skin. I reminded her gently She is really so sweet and is sincerely trying to help, but I gently reminded her of my reluctance to use Premarin as 1) I am an estrogen-dependent breast cancer survivor, 2) I did try it once at her suggestion and almost immediately felt breast tenderness, swelling under my arm where lymph nodes had been removed, and after only two applications of it I had what the EMR doctor diagnosed as a mini-stroke. She agreed once again maybe Premarin is not for me but could offer no other suggestions. I told her that the coconut oil I use seems too keep me comfortable.
She also said that to keep this area from receiving any clob when I applied it to the 'healthy' areas. I should do this: Apply the clob, rubbing it in to the good areas, keep my legs apart for 20 minutes to allow the clob to be absorbed. Perhaps apply some zinc oxide diaper rash cream to the 'unhealthy area' to keep it from absorbing any clob and also before urinating as the urine might also irritate it.
So - more jumping through hoops. What do you all think about this news?
I left her office feeling like I might as well give up trying to cope with it all. I was sure that the itch and irritation would get worse. But I said I would try to do as she suggested.
Her good news, however, was that overall everything there is looking very good. No real sign of the LS except at vaginal opening. No fissures in the perineum.
To my surprise, so far the irritated area has calmed down and so I will see how it goes.
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