sharp, localised head pain during an attack...

Posted , 5 users are following.

This morning at 5am I was woken up by a sharp, constant pain about an inch above my left ear. (my worst side) as soon as I opened my eyes the nystagmus started with my eyes flicking towards the affected ear. And then the spinning. The whole time that spot on the side of my head was getting worse and worse and the only way to get relief was to push my knuckles against it but as soon as I stopped it was back.

5 hours.and lots of puking later I've stopped spinning and the pain has changed to a.dull throbbing in the same spot and my tinnitus is so bad in the left ear that I can't hear even with my hearing aids in.

I'm worried that the swelling of my endolymphatic sack may have led to inflammation or something similar that's causing the pain.

Does anyone share the experience? does anyone know what it is?

Thanks

0 likes, 9 replies

9 Replies

  • Posted

    Hi Erin,

    I heard somewhere that Menieres is closely linked with migraines.  Could you have been having a migraine?  I get focal migraines with funny lights and vision in my eyes but no headaches and so far, no headaches with any vertigo attacks.  As MD seems to be linked with what you eat, could you have eaten something that set you off?  I do the low salt, no caffeine, no alcohol diet which is rubbish as I can only sniff a glass of wine sadly.  What I wouldn't give for a nice gin and tonic on occasion, or a glass of cold pink wine.  Mmmmmmmm.  I can but dream.

    • Posted

      Hi! I don't think it was a migraine I've suffered those before but this pain was only in that specific area and migraines tend to feel like my eyes are being pushed out.

      I try and keep my sodium intake low and consistent and the only caffeine I had yesterday was a tea which is less than usual.

      Oddly alcohol doesn't trigger it for me, I'm not a drinker but I treat myself to whiskey every month or so and there doesn't seem to be a correlation Between that and attacks.

      I've actually heard that tonic water is good for menieres (or at least for the hearing problems) so you might be in luck wink

  • Posted

    Erin,

    i I have had that same pain only above my right ear. I'm no expert but  I have looked around without much success trying find out what is going on. It does seem to be what is called in the area the Temporalis muscle. It looks like this is related to the mandular muscle. Which could bevsomehow be related to TMJ. They call all this muscular trigger points. Do you grind your teeth or find yourself clinchinging your jaw? Do you have stiff neck muscles? Another muscle that can cause vertigo is called the SCM muscle.mi think it attaches to the skull behind the ears. For me the pain above the ear started first then came the dizziness. But the pain above ear did not last long. Vertigo lasted 8 or so hours. There was vomiting and an ER visit as I had not had the pain or the vomiting in the past. Ultimately though for me the sub root of my vertigo was caused by allergies. So I'm really stumped by the pain above the ear. I can tell you though my neck is stiff, I have in the past grinded my teeth at night and still to this day clench and therefore tense my jaw muscles. Then if I look back over my shoulder for a minute or two then lok straight forward that will make me dizzy without the vertigo. Anyway maybe you can relate and eventually find the answer we are both looking for. 

    • Posted

      Hi! Thanks for the answer, it's the first I've had that makes sense! I do grind my teeth in my sleep and I get neck spasms during vertigo attacks, I guess I never considered that being the cause as I Was so paranoid that it was caused by the meniere's.

      I've made a docs appointment, hopefully they will give me an answer smile

  • Posted

    Have a question for you Erin. Do you experience pressure in your ear?

    Then what I plan to do is visit my regular doctor and see if he can recommend a physical therapist that does massage. I hope that way I can make insurance for pay for it. I looked into geting treatment for TMJ but the cost quoted went like this. Initial consultation, then four hours of testing to see if you have it. Then therapy for a total cost of $8,000 of which insurance would pay maybe a third if anything at all. I looked into treatment for TMJ and for those grinding a clenching it seems to come down to stress reduction and physical therapy and wearing a night guard. On the night guard sure it will protect your teeth and if needed realign your bite. But if your still grinding I can't see how that helps in preventing the vertigo. To protect your teeth a night guard can be bought off the store shelf boiled and fitted to your teeth. Then for clenching, I catch myself doing during the day. For tist I just place my tongue at the roof of my mouth just behind me front teeth. That relaxes the jaw. It takes practice but does work. Just have to not learn not to make the tongue press on the back of the front teeth! If I keep having problems in this area I'll have to seek professional treatment but not until I given all other options an honest try. I have also read that low level of seritonin can cause teeth grinding at night and then that gets deeper into why would one have low levels of seritonin. Anyway good luck!

    • Posted

      I do indeed get pressure in my ear although it's more or less constant and I don't notice much of a change in it during attacks.

      I can't believe the amount you have to shell out just to be well again. Living in the UK has its advantages I guess.

      Hopefully if you get referred there by a general physician it won't be too bad.

      Good luck!

  • Posted

    Hi ,last week i found someone on faceebok who treat ménière by APITHERAPY he told me that he treated 3 person ago and the results was great they become normal person without vertigo i hope that will work for me too and will reply to get you more information sorry abbout my english wink
    • Posted

      Apitherapy is the use of honey as a medicine right? I know it has value as an antiseptic but I think it's usefulness on menieres will be that of a chocolate teapot.

      Honey has quinine in it which has been shown to have some influence on tinnitus on some people but the results are so insignificant that it's pretty much coincidence.

      As they always say, if there was a quick/reliable option the doctors would have told you.

      Same goes for the company getting mentioned these days, they sell pills to help menieres using social media and it's rubbish, some low life is trying to profit from the desperation of those at their wit's end.

    • Posted

      no i'm talking about Bee sting there is a points in our body we should work in with this bite until vertigo and the other symptomes go away he confirmed to me that they are healed i'm trying now

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