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Hello everyone. In need of a support group. Some people have good coping skills, however I do not. And I really need to talk to people who can relate right now.
Almost 5 weeks ago I had laser barrage on the bottom of my retina (4-6 o'clock position.) I was told my lattice area was very thin and there was fluid pulling on the holes and it was best to laser it down. I was having an increase in dark floaters which is what brought me in. I was referred to a retina specialist and he wanted to do laser that day. I wish I would have thought about it more. I did feel like I was in danger at the time and that it wasn't optional to not do it. I was crying and shaking and I felt if it was optional they would have told me since I was so upset.
I asked if this would affect my vision and he said no. I asked him so many questions and it was as if there could be no complications. He had me sign a waiver for macular degeneration and I knew I wouldn't be at risk since the macula was no where near where I needed laser.
The first 3 weeks I was so fixated on the fact my pupil was still dilated. I was so upset by it, but now I feel it's the least of my worries. I feel my pupil is getting better but it's still not 100% back to normal. I see small strides with my pupil, but the blurry up close vision is almost back to normal. It seems like my pupil is working over time to try and go back to its normal size and position and I have faith it will make it there since I continue to see improvement.
Then the 3rd-5th week I was getting flashing lights and shimmering in my peripheral vision. The shimmering is getting noticeably worse over time. The more light I am around through out the day, the more it acts up and comes into my vision. I notice it mostly when I look down on my phone, book, or just look down in general.
I've gone back 5 times since the laser on emergency visits and I am told everything is fine and sent home every single time. I don't believe at this point I am in any danger with my retina. But the side effects are destroying me.
I'm finally going for a second opinion this week. I just fear so badly that this flickering shimmering light is never going to subside. And it keeps getting worse. I can't believe this wasn't explained to me, and I have been reading about so many others going through the same thing. This just feels so wrong to me. I feel completely failed by the healthcare system.
I'm questing everything right now. I just want to know or to have someone see this post who has gone through what I'm going through and to tell me it will get better. Yoga is the only thing getting me through this difficult time and even then it's hard to remain positive.
Any coping skills would be greatly appreciated. And I really hope someone will tell me their situation has improved or give me some sort of hope. I really hope this isn't permanent.
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