Shingles

Posted , 9 users are following.

I have had shingles since 04/01 and this is the worst thing I have ever had.It seems to be getting better but then last night I couldn't sleep and started itching even after I took the meds the Doctor prescribed. The sensitivity is the worst its hard to wear shirts even with the Gabapentin. Can anyone suggest something. The symptoms seem to be getting better but the not sleeping is horrible even my cats and dogs are getting mad for waking them up just a little humor we need to laugh with this stuff. My skin is very dry and I wonder will it get better as I heal.

0 likes, 12 replies

12 Replies

  • Posted

    I never took any meds except for the 7 pills that were too late for my shingles. My trunk shingles extreme pain lasted more than three months. I learned to live with it until the pain and most of the blisters disappeared. I sill have the itching (and fatigue) 9 months later and never touched it. Mabe some day the itching will stop. 
    • Posted

      Hello

      The itching is the worst!  It’s been four months since I got shingles on my scalp!  The blisters healed and the itching comes and goes!  I have heard that shingles can repeat itself and people have had up to 4 or 5 cases of shingles in a year!  After those four months I noticed that one or two little pimple like blisters appeared again on my scalp!  Hope it’s not a less case of shingles 

  • Posted

    Woody don't want to alarm you but I got shingles labor day will make 2 years. I am going to a Neurologist, having test run, to find out why I'm still having pain on my scalp and face. When I had Shingles I got a prescription for Diclofenac sodium gel. Biofreese seem to help calm it down too,but don't try to power through Shingles Good luck

  • Posted

    You may need to increase the amount of Gabapentin you're taking.  I have nerve damage throughout my body thanks to the virus but can manage it fairly well with Gabapentin.  Sometimes I will take Benedryl too in the evenings if the sheets are bothering my skin.  I also keep my skin well moistured which helps.

     

  • Posted

    Hey Woody,

    First let me say I understand what you are going through and it is indeed terrible!  It is THE worst thing I have ever had in my life. The pain is unbearable at times and the sensitivity to clothing and touch as well. I was diagnosed Dec 6, 2017 and it took me 3 1/2 months to turn the corner. I was first prescribed an antiviral med along with an opioid Pain med since over the counter meds did not touch the pain. If not for that I couldn’t have slept either! I could not take Gabapentin due to an intolerance of a similar drug. So I used prescription Lidocaine 5% patches which were very expensive and did not do that great. So I used OTC Icy Hot with 4% Lidocaine. It helped for a short time; went through several

    Bottles of that. I also used ice packs frequently, the gel packs that you put in your freezer. So with all that together I made it one day at a time and sometimes an hour at a time. Interestingly, for me very warm showers were soothing. I spent a long time under the water....., lol!  It is pretty much trial and error seeing what works for you. I believe everyone’s experience is different and of course the location of the rash is significant as well. During the worst times, I experienced sharp, stabbing, stinging, aching, burning pain and sometimes itching all at the same time! Now that the rash is long gone, the skin in that area still has a numb feeling and ocassionally itches there as well as above and below. The aftermath is called post herpetic neuropathy or PHN. It occurs in about 10% of all cases. I hope you can avoid that. I also hope this information is helpful to you and your recovery is swift. 

    All the best,

    Jeannie

    • Posted

      I just got a message from my Doctors stand in and she said Shingles doesn't itch I just laughed. I think a lot of the itching is from the dry skin. Do you experience foggy brain also this stuff is crap I wouldn't wish it on my worst enemy. I hope tonight I can sleep.

    • Posted

      You should dump this doctor for being clueless of course it is phn
    • Posted

      Jeannie, you are right on. I got singles well over s year ago and I am still dealing with the pain. I went to a neurologist . just got done with an MRI and a EEG. I go back next week. He wanted to find out how much damage the shingles did. Hope they don't find anything nasty. Good luck with yours.

  • Posted

    Right now, this minute, I am going through this same

    head phn. I hsvr it since 2012.

    is yrs in the scalp too

    i used to usd magnilife nerve and itch pain look it up. It is homeopathic stuff. 

    I don’t use any more after many 5 years of using it and costing me  20 bucks for a 1.5 oz. vial , you care see the expense , about $100 extra a month and non reimbursement of course, that’s $1200 a year for only a moderate decrease of pain.

    i am learning pain techniques, Medical Mary, ice packs, opoidd , some of these I have known all along.

    i go to a psychotherapy too , it’s terrible, I hsve not had a companion in six years because I am in so much pain all the time

     

    • Posted

      Have you been to a neurologist yet? If you go they will find out exactly where the pain is coming from. I'm going now I just got done with the test and go back to the doctor next week. I will let you know what he says. I hope he doesn't find any problems.

  • Posted

    Also I just got a kitty, and she is the best pain medicine ever,
  • Posted

    Woody,

    I am sorry you are going through this.

    For the itching, you might try 1.Oatmeal baths- soothes only while in the bath, but worth it

    2. Lidocaine cream

    3. Solarcaine with Aloe

    4. Vitamin E Oil liquid- helps with the dry skin, buy a bottle in the vitamin section in pharmacy

    5. Prescription for Doxepin from Physician, stronger than Benadryl in relieving itching and helps with insomnia, used by dermatologists

    Let us know what works for you, please, and how you are doing. The Doxepin helped me, as did all of the above!

    Best Wishes

    Merry Juliana

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