Shingles

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I have had really bad pain around my left side of face into my teeth all left side the doctor thinks it’s shingles but I don’t have a rash. She has given me Aciclovir but I am worried to take them just incase it’s not shingles, what should I do.

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16 Replies

  • Posted

    Just my opinion- but I would go ahead and take the Meds.  Shingles is not fun if it goes full blown with the rash etc.

    ​Also do some research on what foods to avoid and which vitamins to take to help your body fight the virus. I had shingles on my forehead. Rash spread down into my eye.( It all started with pain and a weird sensation on my head.) The virus then returned three separate times just in my eye. I now have permanent damage to my eye that will never get better. 

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  • Posted

    Thank you for your advice yes I will take them, sorry that you have had such a bad time with shingles and have eye damage. Thank you for advice.
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  • Posted

    Thank you for your advice yes I will take them, sorry that you have had such a bad time with shingles and have eye damage. Thank you for advice.
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  • Posted

    Take the Aciclovir - you don't have to have a rash to have shingles.

    In recognising that your doctor is one in a million because many GPs maintIn that you have to have a rash with singles - but you don't. Singles without a rash - zoster sine herpete - definitely exists.

    You need to be on antivirals as soon as possible to avoid post herpetic neuralgia - which you most definitely do not want.

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    • Posted

      Thank you for your advice yes I have started the dose given, even I was amazed that you can have shingles with out a rash ! But glad that people like yourself and others are here for reassurance, must say I haven’t experience pain like that I have had for the last 36hrs but it’s easing of with the Gabapentin and painkillers.
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  • Posted

    Play it safe! Go with your doctor’s advice. Furthermore, be ready to see an experienced MD ophthalmologist just in case you happened to get ophthalmic shingles, the worst type of shingles because your eyesight could be severely compromised! Discuss with your doctor the new Rx Shingrix, which has a 90+% of preventing shingles or preventing the return of shingles. I wish you well. Best of success. Ps. I got hit with ophthalmic shingles in July 2013. Thanks to GOD today I have just a mild case of PHN, i.e., basically no pain a little itching, take an amitriptline 25mg pill at night and use Muro 128 5% 2X a day left eye (cornea slightly scarred). I am blessed with the medical providers (primary doctor, dermatologist, ophthalmologist, pain specialists) that took care of me.
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    • Posted

      Thank you for your advice yes I will take them, have read that you can have shingles with out the rash and descriptions are just as mine, sorry to hear your damage but as you say you are blessed that it isn’t worse bless you.
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  • Posted

    Dear Andrea,

    Please take the Acyclovir! The adverse reactions are minimal compared to the full blown case of shingles. Your Physician is probably accurate in his diagnosis and deserves a medal for his diagnosis.

    You could be developing shingles in your ear or eye! The excruciating pain starts before the rash appears.

    Sometimes, the rash never appears, or waits 3-1/2 weeks to appear as in my case, shingles in the ear.

    If your eye feels scratchy, painful, or itchy, or is red or swollen, please see an Ophthalmologist that day! Shingles is that serious!

    We are all here for you!

    Best wishes

    Merry Juliana

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    • Posted

      bless you Merry for your kind words, yes I have taken my first tablet and have taken gabapentin which I have been proscribed and I can already feel the benefit from this. Must say I have neither left anything like this before at first I thought it was tooth ace but did think it was quite different. Thank you for your kind advice.
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  • Posted

    Good advice. I am amazed and frustrated at how little many doctors know about Shingles. I've had it twice; the first time I had a tiny rash on my side. It didn't even hurt. The second time, no rash at all but excruciating headaches. Both times I was totally wiped out for 3 months. I'm a morning person and usually bounce out of bed but it took me an hour to get up in the morning. Couldn't lift arms and legs from the bed and I felt for the first time what it must be like to be depressed. So symptoms vary greatly.

     

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  • Posted

    I had symptoms of numbness in my teeth and jaw, headache tingling around my eye 5 days before my rash appeared. 

    Yes definitely take them. I had 2 lots antibiotics 2 lots of eye cream face cream and 3 trips to a eye specialist. Sooner you get stated the better 

    wishing you well 

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    • Posted

      Thank you Julie for your well wishes much appreciated.

      yours sounds just like mine, just noticed a small rash on the left side of my nose, so I am glad I have started the medication hopefully the rash won’t spread too far on my face but will have to see. Even wearing my glasses is painful, who would have thought shingles would be so painful !!! Not me for sure....

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  • Posted

    Your welcome 

    it certainly knock the wind out of my sails, I have never felt pain like it, iv still got some nerve damage around my left eye. But the after math of it all I think iv got away quite lightly. I didn’t loose my sight. I put a cold compress on mine when it got painful.

    also read what to eat and what not too. Lots of fluid and rest. 

    I kept a photo diary of each stage. I also joined a shingles group on Facebook. 

    Hope you get through this without to much discomfort 

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  • Posted

    Hi Andrea. Sorry this is happening to you friend. It is likely that you DO have shingles that has developed in your eye. If this is the case, you have had the misfortune to have what is considered the worst type of shingles. It is often misdiagnosed because the rash is not typical to shingles found on the waistline or hip. Most often, it first appears as a mild rash on the cheek close to the nose but most often a minor breakout on the nose itself. This is considered the initial phase and left untreated, it WILL worsen and can lead to nerve damage and damage to your eyesight. Caught in time, it CAN be managed through anti-virals. The pain you are having from your teeth and face are nerves firing. No worries about the Acyclovir, as it is a mild anti-viral and not likely to cause any side effects to worry about, whether you have shingles or not. Best to take the meds without delay because not doing so can cost you greatly. Also, when you are clear of this outbreak, do not delay getting the new shingles vaccine that was approved this past January. It is a two-dose vaccine called Shingrix. It is very new, so ask for it by name. You will find many good people here in this forum that will give you sound advice. Follow their advice...they are your friends and will do you no harm. God bless them all. Take care friend
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  • Posted

    Bless you for your advice,

    i have started the course yesterday so hopefully it will stop it in it’s track, I have a small rash on the left side of my nose that appeared yesterday evening but today it’s not growing. 

    It it seems to be mainly in and around my inner mouth and up to the left ear area where it’s numb. But again I can’t see a rash inside but my goodness I have never had pain like it !!! The Gabapentin is helping me with the pain and painkillers. 

    The doctor she was wonderful and straight away she said shingles with how I was describing the pain  even though I didn’t have a rash ? So glad I saw her. The doctor said that some people just don’t get a rash it attack’s the nerve in the cheek flesh but doesn’t come out in a rash, well I was confused about that because we are ill informed about shingles and always associated shingles with rashes.

    anyway bless you for your kind words 

    Andrea.

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    • Posted

      That's great to hear. You are one of the very lucky ones and your doctor deserves a huge pat on the back for this one. True, there is alot of wrong information out there about shingles. Most physicians know very little about this new vaccine Shingrix, which is why you need to ask for it by name. It is not helping matters when even the CDC is still posting that it is unlikely for a peeson to get shingles twice. The many forums suggest otherwise. I am happy to hear that you have begun the meds. Again, please take caution with this type of shingles as it IS considered the worst type unfortunately and recurrence is high. Watch for signs of nerve pain relating to your ear, teeth, nose, cheek and face. This type of shingles is very close to your brain and does put your eyesight at risk. I fought off over 140 outbreaks for a 7 year period and many hospital stays. I am truly blessed that this new Shingrix vaccine did work for me and i have my life back. This is not to scare you friend but just advising you to take great caution and be very aggressive with your treatment. If ever you find a rash on your nose, the tip becomes very red or extremely sensitive to touch, see your doctor immediately because shingles that has moved to your eye typically will first manifest on your nose. No worries about missing the signs, as it is most often undeniable. Take care friend and be sure to get the Shingrix vaccine when you are shingle free. Also, you are correct that there is no other pain like shingles pain. It is brutal and it will require you to take strong pain meds for any relief. Because of this unfortunate fact, for your own sake and for those who love you, please use caution with the pain meds. They are a must that you will not be able to avoid but it is best to NOT self medicate. Have a friend or spouse control your pain meds and always assume that after you have taken that first pain pill, that you are no longer mentally capable to judge when to take the next. We have lost too many wonderful people to opioid addiction and shingles pain is a one way street straight there, if you're not careful. Take care and God bless, friend

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