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Shingles on just elbows/shoulders

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JCUSAoregon
JCUSAoregon

This began in '83 right before I got married, I mean 'right before'.  Now periodic and can skip years in re-appearing.  New Obamacare forced me to get new healthcare insurance, new doctor, etc.  I had my first physical this week and was complaining about the pain from my elbow to my hands.  She didn't know what it was - within 2 hours of leaving her office - 'OWEEE' - the 1.5-inch blister-cluster showed itself.  I got my shingles vaccine last year (they make us wait until we're 60 years of age), so having this happen never entered my mind!  BUT,  weirdly, when I went back to the doctor the next day with my self-diagnosis, she gave it a different name and said it wasn't really Shingles, but instead gave it a different herpes name I've never heard of (and I've had about a dozen breakouts since '83).  She also said topical treatments really don't help when you're taking internal meds... ( really ? ).   Now I'm taking 'Famiciclovir 500mg' for 10 days.  Day 3-I just 'hit' my elbow on the sharp edge of a plastic box, so it broke open (disinfecting everything, I mean Everything).  Don't you think a topical might help this pain?   My entire arm hurts from just below my shoulder to my hand. Pic is Day 2 of breakout, right after getting out of bed.  all feedback welcome.

0 likes, 4 replies

4 Replies

  • bedilia
    bedilia JCUSAoregon

    Posted

    JCUSA,  I had to take 2 courses of Famcliclovir.  When I asked my PMD ( <3 ) , for a 3rd course he told me, i most likely was having phn. and the antiviral wouldn't help.  in fact he told me it was probably the reason i was so somulent and had an altered level of consciousness,

    don't get the vaccine.  it is only effective 40% of the time in a normal healthy person.  i got the vaccine last year because i had already had shingles twice.  when i had to go on steriods for another issue, bam!  out came the worst case of shingles i had ever had!

    i found that gabapentin, orally, helped the most with the pain.  hope this helps you.

    christine in so california, usa )="" ,="" for="" a="" 3rd="" course="" he="" told="" me,="" i="" most="" likely="" was="" having="" phn.="" and="" the="" antiviral="" wouldn't="" help.=""  in="" fact="" he="" told="" me="" it="" was="" probably="" the="" reason="" i="" was="" so="" somulent="" and="" had="" an="" altered="" level="" of="" consciousness,="" don't="" get="" the="" vaccine.=""  it="" is="" only="" effective="" 40%="" of="" the="" time="" in="" a="" normal="" healthy="" person.=""  i="" got="" the="" vaccine="" last="" year="" because="" i="" had="" already="" had="" shingles="" twice.=""  when="" i="" had="" to="" go="" on="" steriods="" for="" another="" issue,="" bam!=""  out="" came="" the="" worst="" case="" of="" shingles="" i="" had="" ever="" had!="" i="" found="" that="" gabapentin,="" orally,="" helped="" the="" most="" with="" the="" pain.=""  hope="" this="" helps="" you.="" christine="" in="" so="" california,="">

    don't get the vaccine.  it is only effective 40% of the time in a normal healthy person.  i got the vaccine last year because i had already had shingles twice.  when i had to go on steriods for another issue, bam!  out came the worst case of shingles i had ever had!

    i found that gabapentin, orally, helped the most with the pain.  hope this helps you.

    christine in so california, usa>

    • JCUSAoregon
      JCUSAoregon bedilia

      Posted

      Thanks Christine,  What's PHP?  (I'm new to this site).
    • bedilia
      bedilia JCUSAoregon

      Posted

      PHN is "post hepatic neuralgia".  Some people continue to have pain, along the affected nerve root, for long periods of time, long after the "shingles" appear to be over.  PHN pain, in my opinion is far worse than the actual shingles pain.  Antivirals do not help, in fact they can make it worse.  

      I was taking gabapentin, which seemed to quiet the pain down, but I started having side effects from the gabapentin.  It's a vicious cycle that, at times, never seems to end!

      The important thing is to stay strong and don't give up hope, even when you feel there is no hope.  I have a strong, abiding belief in  God and prayer.  This helps me the most, specially when I am at my lowest!

      God Bless!

      Christine

  • ukulele_girl
    ukulele_girl JCUSAoregon

    Posted

    That looks so sore, poor you! What name did the Doctor call it? It looks like shingles to me, my thigh looks just like that at the moment.
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