Shingles. Really?

Posted , 4 users are following.

Dr says I have shingles. First time and aged 72. I don't know if I had chicken pox as a child. No itching yet but the rash is there. Taking Aciclovir 800 mg five times a day. So what to expect now?

1 like, 15 replies

Report

15 Replies

  • Posted

    ACUTE HERPES ZOSTER-SHINGLES

    I am so sorry you are going through this right now.

    I am a Nurse Practitioner in the States. I have had Herpes Zoster-Shingles in my right ear, mouth, and throat every three to five weeks for the past twenty-two years and twice in my right eye. It has now escalated to include my entire right scalp, as well, just to keep me doing more headstands, I am certain.

    This is a summary of the stages, signs and symptoms of Herpes Zoster-Shingles, and medical management of the disease.

    During the Pre-eruptive Phase, you may have some of the following symptoms:

    Duration 1-10 Days, but the rash occasionally takes much longer to appear

    Headache

    Photophobia

    Generalized Aches and Pains

    Fever, Chills, and Sweating

    Enlarged Lymph Nodes near the pain and rash

    Fatigue and Exhaustion

    Pain usually preceding the rash, but not always

    Itching

    Description of pain: deep burning or aching pain, or electric shock–like pains.

    Acute Eruptive Phase

    Rash of grouped vesicle-blisters in a dermatomal pattern.

    Occurs in waves or crops over a period of 5-7 days.

    Vesicle-blisters look dissimilar and are of different sizes.

    The rash is on a red base.

    The pain may continue to increase into the second and third week.

    The clear vesicle-blisters cloud over, look like pustules, scab over, and turn black. This process may take between 2-4 weeks. Once every vesicle-blister has scabbed over, you are no longer infectious!

    You are considered infectious (contagious) if your rash is open to the air, ie not covered, to anyone who has not had chickenpox. This includes all pregnant women! Remember, not all women know they are pregnant!

    Chronic Phase (Post Herpetic Neuralgia PHN)

    30 days after onset of rash. Definition varies

    Duration may last months or years after initial episode of Herpes Zoster-Shingles.

    The resolution of the scars can take up to a year to heal.

    Management and Medications

    ANTIVIRALS: THE CORNERSTONE OF TREATMENT

    Famciclovir 500 mg 3x daily 7-10 days, sometimes 14 days.

    Smallest Tablet

    Convenient dosing

    Least Resistance

    Valcyclovir 1000 mg 3x daily 7-10 days

    Large Tablets difficult to swallow for some

    Based on Acyclovir

    Acyclovir 800 mg 5x daily 7-10 days

    Inconvenient Dose Schedule

    Growing Resistance to Varicella Virus

    Acyclovir is the antiviral most often prescribed in the UK

    What dosage of the medication are you on? Sometimes, the Physician places the patient on a lower dose, but needs to increase it to help with the pain-itching.

    Sometimes, you need to be placed on a cocktail of medications, as they will work synergistically to help you. These are all by prescription. I have grouped them according to class. A clinician would start with one from the Anticonvulsant class, taper the dosage up, then one from the Antidepressant Class, etc. This list is by no means complete.

    ANALGESICS

    NSAIDS

    Ibuprofen

    Naprosyn

    Acetominophen

    OPIOIDS

    Oxycodone

    Hydrocodone

    Codeine

    CBD

    ANTI-CONVULSANTS

    Gabapentin-Neurontin

    Pregabalin-Lyrica

    ANTI-DEPRESSANTS

    SNRIs

    Cymbalta

    Effexor-Venlafaxine

    Heterocyclics

    Nortriptyline

    Amitriptyline

    2. I would find 100% cotton knit clothing. Make sure there are no seams to irritate your skin. The cotton knit is the most breathable, least irritating cloth to most individuals.

    3. Use Lidocaine Cream or Spray OTC topically to help with the pain- itching, eg, Solarcaine with Aloe or Bactine. Many on this forum feel either Lidocaine or Benzocaine help with the pain-itching. The cream might soothe the inflamed nerve endings better and last longer on the skin. You can only use Lidocaine 12 hours on and 12 hours off, as the usefulness will extinguish itself.

    4. Use ice or cool compresses. Do not take hot showers, as it will only increase the pain-itching

    1. You need to rest and sleep. You cannot power through this disease. Do not go back to work! This virus is way stronger than you are, and you will only get more pain, the more exertion you do.
    2. Most Importantly, get the Shingrex Immunization. It is a two phase vaccine, two months apart. It is given intramuscularly. It is highly efficacious in stopping Post Herpetic Neuralgia PHN and recurrent episodes of Herpes Zoster-Shingles.

    Shingrex is available in the US at the pharmacy and covered by insurance if you are over 50 years of age. If you are younger than 50, and have had a documented case of shingles, it is still covered.

    If you are in the UK/Canada/Australia/NZ, I know it has been distributed there, but the national health insurance may not cover it until age 70, which is ridiculous. It is expensive, but I would have paid thousands not to have recurrent shingles.

    Best Wishes

    Merry Juliana

    Report Reply
    • Posted

      Thank you for your detailed reply, it is very much appreciated! There were no tingling sensations before the rash appeared, it seemed to arrive overnight. No major itching yet. I'm having other health issues as well. My final appt with my bowel cancer nurse is on Monday, but she may want to postpone it now. I reached the five years all clear for that this month. Then prostate cancer was found and I begin radiotherapy next week. But again, maybe wait a bit? All very frustrating! Thanks again. I hope you can feel well again soon.

      John

      Report Reply
    • Posted

      Dear John,

      It is more than frustrating. May I ask your Gleason Score and if the prostate cancer is limited to within the gland?

      Merry Juliana

      Report Reply
  • Posted

    I to was diagnosed three months ago and I am 72 years old, I of the worse illness I have ever experienced , I am now on Versatis Patch and Pregabalin tablets plus two 500 mg of paracetamol four times a day, they help but still get the after effects of shingles even with all these, I hope you don't have to go through this, every day I tell myself maybe tomorrow things will be beutter.

    Report Reply
  • Posted

    ask for a rx for topical lidocane and always keep anti virals rx filled to have on hand for future use. very important to reduce the chances of getting recurant and serious outbreaks- rashes in the future. the Shingrex immunization shot will provide you with protection against and future issues and protect against nerve damage . . shingrex has a booster in 3-6 months . your very early in the shingles journey and very lucky no rashes. hopefully you may head it off at the pass and once this current bout is over you will run not walk to the nearest center for SHINGREX. it is very effective protection even once after a shingles outbreak. there is a shortage in the US so be advised to be on a list to be called as soon as shingrex is made available. i dont know if your in the UK , US, ... in the US we dont need a docs approval for these shots and they are available at pharmacies everywhere.

    GOOD luck.. STAY shingles free if and when possible. protect yourself with the immunization. i am one of the lucky ones that has not experienced serious rashes at diagnosis of shingles i was advised to obtain the shingles immunization. i received the first immunization 7 years ago and then was advised that the shingrex is more effective and long term protection because the initial dose from 7 years ago losses its effectiveness after time. the new immunization -shingrex is more effective and does not require future immunization updates.

    Report Reply
    • Posted

      Hi. I've come across your name a few times. I do have a rash but no itching yet. I'm taking Aciclovir 800 mg five times a day. I'll look into your suggestions, but I live in New Zealand so have no idea what is available. Thanks for your help.

      Report Reply
    • Posted

      hi john, i have read that there is the old immunization available zostavax... available in NZ . in the US there is a shortage of SHRINGEX.. im due for my booster soon . hope you get the zostavax it helped me for many years. i was diagnosed like you early with no rash... and have managed to not experience any serious effects from shingles. my son at 38 was diagnosed with shingles.. it can hit at any age...

      good to hear the antivirals are helping at this early stage.

      Report Reply
    • Posted

      Hi. I've got the red rash with little bubbles but no real itching yet. I shall ask a few questions while I am at the hospital tomorrow for the bowel cancer appt. All go atm.

      Report Reply
  • Posted

    A Week later and the rash isn't so red looking. And still no itching etc! The bowel cancer nurse delayed my appt for two weeks and the radiation for prostate cancer will be some time in January. Maybe I missed the worst of the shingles symptoms...

    Report Reply
    • Posted

      Day 12. Still quite red and some itching, but nothing like I've read about. An ache in one spot at night which was dealt with by pain killers. Bowel cancer appt now January as well. Just how long do these rashes last then?

      Report Reply
    • Posted

      you have had way too much to cope with ... shingles and cancer. i hope you can fight cancer and come thru cancer free soon. friggen cancer i hate to hear your going thru this . i hope you have family support and some hospitals have great support centers. perhaps that is the stress factor that caused shingles. i pray that you receive all that you need to sustain you thru this journey and sending healing angels to carry you and take your pain both emotionally and physically. many healing blessing soon to clear shingles. keep in touch.

      Report Reply

Join this discussion or start a new one?

New discussion Reply

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up