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Some of you may get 2 separate posts from me. I was typing and somehow lost my update. Ugh how I hate computers at times. Anyway my pain (year 3) is my right trunk, shoulder and numbness and tingling in the right side of my face.
Don’t want to retype right now what I just lost. Any type of repetitive motion can set the pain off. I also have pronounced allodynia. Can’t wear a bra. Wardrobe options are very limited.
What are people being advised re Shingrix? I was vaccinated about 7 years ago with the old vaccine. My NP didn’t know how to advise me several months ago when I asked about getting the new vaccine.
Part of my treatment is 400 mg of Lyrica daily, for almost 2 yrs.
For those of you taking it, what has your experience been? Brain fog and fatigue for me but I think it does ease the pain. Last few months hair loss. But that could be to the different antidepressants I tried. Can’t take them, terrible nausea. That on top of the PHN pain was close to unbearable.
Anyway, as always my heart goes out to all of us who suffer. Especially you younger folks still in the workforce and/or trying to raise a family.
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