Shingrix THIRD DOSE
Posted , 5 users are following.
Hello friends. I hope this finds you all doing well this Christmas Eve night. I have not posted in a while but i have not forgotten any of you or the wonderful support you all gave to me at one of my lowest times.
Those of you, who know me, are aware that i took the Shingrix vaccines June and August 2018 and had amazing results after. I did have to take both vaccine doses, with active shingles, and this caused the side effects to be severe at first but the aftermath made it all worth it. Other than the damage caused to my fifth cranial nerve, from having shingles in my eye so many times over 8 years, that resulted in Trigeminal Neuralgia, i did get my life back again, after taking the 2-dose vaccine.
Unfortunately, things changed thereafter. The doctors do not know if the physical pain of Trigeminal Neuralgia (TN) caused the shingles to return, or if the shingles returned on their own and are bringing on the TN. Either scenario, i have had several hospital stays since i last posted here on the site. Despite the reason unknown, after having both doses of the Shingrix vaccine, the shingles have returned.
I hope this does not discourage anyone from taking the Shingrix vaccine because it DOES work for most people. I still believe this firmly and believe my current condition is NOT the norm for most.
Despite CDC recommendation, 5 days ago, i received my 3rd dose of Shingrix vaccine and i DO intend to have the 4th after the normal two-month waiting period between doses. Like the previous 2 vaccines, i have also taken this latest vaccine with an active case of shingles...not that i had much choice in the matter, as the shingles were not subsiding. If this does not work, i have prescription to receive AGAIN, the live virus vaccine, Zostavax. Of course, ALL of this is being done under CLOSE doctor supervision.
At this point, i can only confirm that this route is not advisable, unless absolutely necessary, because the path is a rough one, but it is survivable. To my knowledge and my doctor's knowledge, i am the only one that has tried this so far. To confirm or deny, i hoped i might find the answer here. I am in a great deal of pain, with shingles appearing in several places on the right side of my body. Has anyone else repeated the Shingrix vaccine?
Merry, have you heard??
Merry Christmas to ALL.
0 likes, 19 replies
Guest r._f._09034
Posted
HELLO r f
Its been a while and sorry to hear of the aftermath. I AM one here who knows what you have been through and so sorry to hear about the shingrex vaccine! I will not take it for the same reasons most people dont take it! KNOWN so many people who have taken it with no positive results! I BELIEVE once you get shingles you dont part with it! IT STICKS with you! I Thought they were gone after a full year on and off! I GET them every 3-4 months! Right now I thiught they were gone cause my scalp was clean, besides the nerve pain! I WAS clear since November and yesterday I was in pain and there was the blister!! I WAS mad, hurt and depressed!
This is not going away! I HAVE flu symtoms and so much pain!
WHAT I dont understand is why shingles dont go away when its on the scalp? My mom abd sister got shingles ONCE, under the brest and that was it! WHY cant it be like that for me?
Please tell me i am wrong! I DO know yiur pain and what yiu gave been through as well! I Dont want to die with this! I want a normal life! IS that too much to ask? I AM tired of this pain over abd over again! I always have yiu in my prayers a d hope that one day this can be over for all who suffers this mad disease!
Hope you can fight this! I Dont know if i can!!
BEST regards,
MYRNA
r._f._09034 Guest
Posted
Hi Myrna. Great to hear from you, friend. I was down for while, feels like a long while. So, i haven't been on here very much because the shingles in my eye often makes it painful to look at my cell phone screen. For the Trigeminal Neuralgia, we finally got my dose right and it greatly helps with all the nerve pain, caused from both Shingles and the TN. So, there's some progress, at least. But yes, the shingles did return. The outbreaks now are not as bad or often as they were before taking the Shingrix vaccine. So, the vaccine did give some relief.
Myrna, i'm so very sorry you are also still suffering. Thank you for being so sweet and supportive. I've thought of you often and wish i could take your pain away and let you have peace. I understand the complete let down, after getting the shots, when the shingles returned. When my shingles came back, i just wanted to crawl into the bed and be left alone. I cried so hard from the disappointment and truthfully, i even questioned if God was punishing me because i have also known MANY people around me that have only had shingles once and other people having it repeatedly but it was mild every time. Not that i or you would ever wish this agony on anyone, but i can't help but be envious and wonder why my case is so bad, while others can actually have a normal life, both with and without shingles. I get angry alot and can barely remember what "normal" feels like anymore. But, i want a life that other people have though and willing to roll the dice again, with retaking all these vaccines. I hope you do go get the Shingrix vaccine for yourself, sweetie. True, it might not work for you or me but if there is even the smallest chance of it working, we both deserve the opportunity. Taking the vaccines all over again, i am very hopeful but trying to not get my hopes up this time. Girl, i'm sorry for what you are feeling today. I've been there and it's a lonely feeling. Unbelievably odd that you sent me this message today because i ALSO had blisters show up day before yesterday and i have been laying on my couch for two days and crying at most everything. So, please know that you are not alone right now. You are NEVER alone because i know EXACTLY how you are feeling and you know EXACTLY how i am feeling and somehow, there's a special comfort in knowing someone else DOES truly understand. Please take care of yourself and i will be praying so very hard for you. You are a sweet beautiful friend. Thinking of you.
~Rhonda 💕
Guest r._f._09034
Posted
HELLO again RHONDA
SO happy to hear from you my good friend. With all this pain, you managed to bring a smile to my face from just hearing from you. I Want you to know that you are also in my prayers. i can feel your pain because I KNOW what you are going through and its no easy task.
I am afraid of the vaccine because everything i do has complications and i really dont need more pain and suffering right now!
ITS like you say, so many people get shingles once and their done! BUT here there are so many like us in pain and suffering. Doctors here in the carribbean dont get it! They dont do as much research as we do! My eyes hurt so much I CAN open them wide.
I still have to take care care of my mom and she is 83 years old. MY sisters dont believe this is happening to me and they say shingles is only once so I DONT tell them anything anymore!
i hope you are a bit better and i will keep yiu in my prayers because we need a miracle!
GOD bless,
Myrna