Shortness of breath is this a symptom of Fibroids as this is worse since my diagnosis?

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I started my journey thinking I was pregnant with no period for 2 months it was an exciting time until my third month discovering I not only had my period but the most painful yet.

I had terrible nausea every day, stomach very sensitive and sore to touch, I had up and down moods mostly crying at a drop of a hat. exhaustion and breathing problems - I would be out of breath even walking for a short period of time. As well as going to the toilet more often - IBS symptoms in my mind and wanting to urinate more.

I thought whilst feeling pregnant overjoyed at the symptoms and after an internal scan and blood tests they discovered fibroids (3) egg size - in my womb wall and a 3cm cyst on my ovary.

Until this time I always had bad periods but no real symptoms like this and now I have constant symptoms and feel my health quality has taken a real bad dive. I told the doctor who agreed and said they will monitor me. He however tested me for bowel disease even though I knew it was linked to the fibroids.

My concern is especially when going to Edinburgh for  break with my partner I had to keep stopping and starting up hills with my breath etc does anyone have shortness of breath with this? When I google they say it can be a symptom but I am seriously getting worse over time.

I did body coach before was much more happier but I so want to get back to being the way I was and feel a long way off.

I have been asked to get my second scan results soon but the guy who scanned me asked me if I was in pain or if I had an op before on them? I know and feel with increased symptoms things are not great so not sure what to expect.

I would love to hear experiences and love this page its been a real support to know you are not alone . Thanks

 

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  • Posted

    It could be two different things.  I had something similar.  I also have bad fibroids.  But my breathing was a different issues.  It took 4 specialist and 4 years for them to discover that I had scar tissue growing across my throat under my vocal cords. They couldn't find it because it isn't always caught on a cat scan.  They had to put me out and look around to find it.  It's an uncommon thing that affects mostly women in their 40s.  Here is a test that might be helpful.  Do you have trouble when you breath in or out?  Apparently asthmatics have trouble breathing out, but I had trouble breathing in, which is a sign that it is not asthma related.  I hope you find your answer.  For your fibroids, use a magnesium spray as a magnesium supplement.  It will help with your symptoms and you could always try Fibristal/Esmya.  It is often helpful for symptoms and could help reduce the size of your fibroid.  The only side effect that I get from it is I get tired, but it greatly reduces the pain I get and I don't have a period while I'm on it.  If you drink alcohol you may want to try cutting it out.  I recently discovered from experience that this effects fibroids.

    • Posted

      Thanks so much Carol for your advice and that’s such a great help. I do think it’s breathing in so I will make a note of this when I go to my GP.  The supplement and Fibristal sounds good also I will look into this. I do like a glass of wine so it’s frightening to think this could be contributing. Such a great reply and very helpful. 
  • Posted

    Hi - I too can fully related to this post. I have a few large fibroids and a bunch of tiny ones.  The largest being 10+cm (subserosal exophytic (sticking out of uterus but still hasn’t ‘flown the coop’ so to speak). I also have asthma (since childhood). I also am having a harder time breathing as ’the gals’ get bigger (shortness of breath/gasping for air etc). I am not a doctor but I used to me an EMT and we do cover asthma as it is often an emergency issue. While clinically speaking it is true that the problem with athsma is that you aren’t breathing enough air out, the symptom is feeling like you can’t pull air in. Stale/useless air gets trapped in the lungs and the fresh air can’t get in. So no asthmatic I know has ever complained of the sensation of not being able to take a deep breath out, it’s always the ‘in’ direction that feels awful for us.

    Now again I’m not a doc but I am a biologist employed as a research biochemist at a Med school, and sadly basic biology and biochem seem to be the classes most of the Med students ignore, memorizing just enough to pass. With the bit that I do now about biology and biochemistry I think that it is reasonable to assume that these beastly bowling balls/grapefriuts/melons etc could be causing breathing problems in several ways... the first most obvious is the effect it’s having on our diaphragms... located in the abdomen and just as important as the lungs for breathing. If it’s getting pushed on it can be harder /more of a concious act to breathe than usual (a common complaint of late term pregnant women). Another way it may affect our breathing are the biochemical affects (which would take too long to get into just now but are very real problems). One personal example of this that I will point out is that due to certain transcription factors missregulated by my tumors... I have had awful itchy (often 1/2 my body) rashes that come and go for ~3.5 years. No doc has ever figured this out  mind you, cause it’s ‘not their specialty’ - even the allergist said that ??! The reasons I believe the fibroids are causing the problems: 1)all the previous testing on me that they did to rule everything else out and 2)that it started around the same time as the heavier bleeding and more painful periods, IBS problems, weight gain etc. 3) if you go searching enough it is in the medical literature as a possible fibroid complication.  

    Also I just want to point out (and please forgive me if I’m wo’mansplaining but I wish someone had told me) that the anemia caused by the heavy bleeding isn’t just a lack of  iron problem, it affects lots of things. 

    Another personal example is B12- there are all sorts of complications for how they are currently testing and diagnosing B12 deficiency but it can cause some types of anemia (while iron levels are normal). In this thread I noticed some people mention numbness and tingling in the hands/feet- b12 is often the culprit here (when there is heavy bleeding) with far worse symptoms (neurological etc) possible. 

    So if you suspect this may be happening to you for at least this one symptom, you can treat yourself with sublingual (under toungue drops) of b12. The doc Rx shots are prob more effective, but I got fed up with their arguing with each other over the standards and decided to take the over the counter drops and no longer have the same numbness tingling problem.

    I should mention too- that sadly much like the fibroids if you don’t know about it or are told to ignore it, over time b12 deficiency if left too long can morph into a much bigger irreversible problem causing permanent nerve damage.

    Sorry for the rant but I hope that’s a little helpful.  

    Thank you for your post and everyone’s replies it makes all of this less scary knowing I’m not the only one.

    • Posted

      Merz, hear hear!  It's incredible how doctors have no clue these days let alone no care.  It's bloody common sense really but they continuously fob you off almost as if having no DR as a title makes you clueless.  I believe in seriously listening to one's body and when you feel something is wrong, something is surely wrong.  Fibroids take so much out of a person, doctors have absolutely no right to tell a patient, fibroids don't do that unless they can speak from experience.  A friend of mine had a hysterectomy and she too said she experienced breathlessness and heart palpitations (which I'm experiencing too) and after the hysterectomy, the symptoms disappeared.  I'm not keen on hysterectomy and I don't think any doctor has the right to tell a woman that's your only option particularly due to your age, just to make life easier for them.  WHY IS NO ONE FINDING A REAL SOLUTION?  If men were going through this, believe me a solution would have been found years ago!  We need to get a Women with Fibroids Matter movement going and our voices heard.  I'm sick of the complacency!  Twitter here I come!

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