Should I have thyroid removed or look for alternatives?
Posted , 8 users are following.
I was treated with carbimazole for a year which stabilised my thyroid, I was then taken off it. My thyroid remained normal for about 7 months. However my latest blood test shows an increase in thyroid activity and is too high again. Options presented by my specialist are radio active iodine (don't want this) or removal of thyroid (not really keen on this either!)
Are there any reliable and safe alternative solutions to controlling thyroid function that people are using? Also, is there anyone out there that has had the radio active iodine or thyroid removed? Comments please as I'm not sure which way to go.
Many thanks!
1 like, 31 replies
Screwball21
Posted
Ladykinkavel
Posted
linda187
Posted
If it were me, I would definitely avoid either surgery or Radioactive iodine at all costs. Doctors are prejudiced in using these methods but I have heard of no one who had this done that is happy with the results. It just swaps one problem for another.
Linda
Ladykinkavel
Posted
linda187
Posted
Linda
Ladykinkavel
Posted
Screwball21
Posted
Ladykinkavel
Posted
linda187
Posted
What I found though was that though regular L-Carnitine raised my TSH slightly, the Acetyl-L-carnitine is better absorbed by the body and it raised my TSH right into the normal range. I think it also got rid of my antibodies.
I am on only 5 mg of methimazole which is the same as the carbimazole you have in England. My symptoms are well controlled and all my thyroid blood tests are normal.
I have no fear of osteoporosis because my blood results are normal, I have no symptoms on this regimen and I take a small amount of bioidentical hormone replacement therapy which keeps my bones healthy. I also take Vitamin D3. I am 66 years old, have had testing of my bones and they are fine.
You can also get your L-carnitine value measured by blood tests. Mine showed a deficiency and I bet if all Graves patients were tested, they would show a deficiency in L-carnitine. My specialist was shocked at how well it worked for me.
Linda
linda187
Posted
Linda
Ladykinkavel
Posted
mymalo
Posted
Yeroliza AM22
Posted
I am almost in the same situation. Unfortunately, I also have atrial fibrillation as a side effect of hyperthyroidism. Carbimazole was my saviour and put me back in rhythm and stabilized my thyroid. They took me off it to prepare me for rai and I went right back into atrial fibrillation. So I told them I wanted to go back onto carb and leave it at that. I feel great on this medication but they want to take me off it saying it can just turn for no reason and mess with the blood cells. My only option they say is removal. Like you, I am not happy with this alternative as many say they never feel quite well and it just doesn't sit right with me. I personally want to stay on carb. My GP says he has had patients on it for years with no bad side effects. Why are the consultants so keen to give me surgery. I am confused ?
linda187 Yeroliza
Posted
Yeroliza linda187
Posted
Thank you so very much for your prompt reply. I cannot tell you how good it is to discuss this with someone who knows about it. Your doctors "follow the herd" theory is exactly what I think about it all. I know I have the right to refuse RAI or surgery but I am hoping when I see the consultants next week they allow me to stay on carbimazole. I have decided it's what I want to do. Although I will always be a little worried about carb suddenly "turning" as they put it. I am on a low dosage 10 mgs daily and my readings are dead centre normal. Maybe I'll ask to trial going down to 5mgs and taking L-carnitine.
linda187 Yeroliza
Posted
Yeroliza linda187
Posted
Has anyone heard about low dosage naltrexone?
linda187 Yeroliza
Posted
Yeroliza linda187
Posted
linda187 Yeroliza
Posted
linda187
Posted