Should i use the steroid on clitoris before seeing the specialist

 I have never seen specialist so I was trying to hold off on the steriod.   I have called my dr. here at home who made my referral to the specialist. She told me while waiting,  use it acordingly depending on how it irritates me.  She also treated me first with steroid then did biopsy which was neg.  But because of how I look , she made the referral.  I know I will call specialist.  Thank you for responding Patricia.

 

So, then you're not concerned that you won't get a proper diagnosis. I know from experience how fast the hood can fuse to the clitoris. I'd be inclined to use the Clob. But also lots of oil (coconut or whatever – I bought jojoba oil in the health food store and love it). When you say it's becoming smaller, are you sure it isn't that it's still there, but getting buried by the hood or inner labia fusing over it? Mine has 'disappeared', but it's all there, under my zipped inner labia and the fused hood.

I really hate this dumb disease.

I agree with Morrell (her reply is below)...I would use the steroid.  It is strange the biopsy was neg., unless the steroid had already worked on the LS....this whole disease is so wierd.  I use emu oil many, many times a day, every day.  For me, my skin felt sort of "sticky"...ick...I didn't like that feeling, so I use the emu oil all the time which keeps the skin nice and soft and doesn't stick to itself.  (Ick again)....anyway, lots of women here use coconut oil.  I have used it a bit, too, but I prefer the emu oil.  I get it much cheaper than the health food store when I buy it on eBay.  I also use emuaid cream if I have any sort of sore spots.  For some reason doctors don't seem to tell us to use some sort of oil to keep the skin soft and un-sticky.  I learned that (and so much more) by reading every single letter this is posted here.  You will find out lots of helpful advice here, too.  Keep reading!  :o)

oops...Morrell's reply is NOT below...now this is below...Morrell's reply is above..oh dear...............

Hi, Morrell,  I was interested to read that you are now trying jojoba oil.  Do  you like it better than coconut oil or emu oil, or are you just shaking things up a bit?  The other oils are antibiotic, right?  Is jojoba oil?  I know emu oil has some pain-killing properties, which may be why I like it better than coconut oil...

Hi morrell...like patricia I would like to know a little more about what you love about jojoba oil and have you added some frankincense to it ( I think that's what you mentioned in a prior post).

You gave me something to consider so I went ahead and ordered three oils to try;  jojoba oil, argan oil, and avocado oil.

I haven't opened any yet but I am considering trying it on an ezcema area first to see what happens.

I have never bought as many creams and lotions in my whole life as I have recently.

My dressing table is taking on the appearance of a pharmacy. lol.

Mine too!!  And while I would never spend $50.00 on any kind of face cream, I am spending $50.00 now for different creams that are supposed to "cure" LS.  I have bought and am buying emuaid, $50.00 a jar, creme complete, $50.00 a jar.  sheesh.  I even bought some underpants that were almost $100.00 a pair because they promised to help LS.  Actually, they did!!  They are stone ugly, but very, very comfortable.  Unfortunately, when we had our house fire and had to leave our house and everything that was left 5 months ago, I just didn't think to grab those undies!  So they are packed up somewhere with all our other stuff.  When I think about how ugly those panties are, I shudder to think of how pitiful I must seem to whichever insurance cleaner-uppers had to find them and pack them up to be stored.  sigh.  Even more horrible, I seem to remember that something like: theraputic underwear is stitched into the waistband.  Oh dear.

Oh, that is so funny patricia.

I know what you mean, it's a dumbing down when LS forces us to move over to dead dreary knickers.

I have a whole drawer full of fetching briefs waiting there for who knows what!!

Still, it's good to laugh especially concerning LS.

Well I took the plunge and opened the jojoba oil.

Applied it to the nether regions and no nasty reactions.

I am of to The Great British Rythme and Blues Festival shortly and I have put on a pair of linen trousers. 

This is the first pair of trousers I have worn in months but I hope they don't begin to aggravate.

I am now good to go and hope I come back home feeling the same.

Wish me luck.

 

I'm not using the right terms...not use to talking about my private parts.    I checked and yes it is actually one side of the labia minora that has folded over one side, I guess, and that is what  I was calling scarring.  The clitoris hood is completly fused over the clitoris.  I know I have LS with the symtoms and visual. But there are other areas that I am not sure what is going on.  I'm not going to use steroid on those areas. I am concerned about getting the proper diag. I am afraid there may be other things going on.  I don't want the clitoris to get worse, but I have heard two things.. that the steroid makes it worse and on the other hand it helps.  It has been getting worse while not using it. Yes, it IS a dumb disease, and it makes me feel dumb,  I don't even know my own body, and I have so many questions. Always trying to it figure out .  Thank goodness though, I am not too uncomfortable.  Just look like hell and can't have sex.

Hi Judy. I know there are a number of women on here who have had a negative reaction to clobetasol. That isn't surprising. I've read that on average women tend to use too little rather than too much. It also stands to reason that those of us who are most skittish about using steroids are probably using too little, so when it doesn't work, then they are justified in ditching it. I often wonder if I've been too stingy with it, both Dermovate and now Tacrolimus.

Your anatomy sounds like it's on track with mine. Who knows how much we can expect the drug to help? Maybe we're supposed to be happy if we're comfortable as long as we don't have sex.

I bought the jojoba and frankincense after young Liam wrote about his success with them. A number of women here had said they became sensitized to coconut oil, so I thought I'd try the other just to mix it up. So far, so good.

I looked up Perrin's creams after yesterday's post on it. I have a friend who makes and sells organic creams with her own beeswax and grapeseed oil, both of which were major ingredients in Perrin's. I use it on my face and love it. It's very expensive and I don't believe it's really of any value beyond non-chemical moisturising. I used great jugs of Aveeno lotion on my skin (psoriasis) for so long... this cream lasts all day, so it isn't really that costly. But she's stopped making it and I don't want to use it where I pee, seems a waste.

Hi Morrell,

I have now used jojoba oil on vulva area and the ezcema on my foot.

No adverse reaction in vulva area so I think it will be ok for vulva.

The ezcema didn't do as well with jojoba oil as it does with Cetraben.

With Cetraben it moisturisers and seals the skin surface preventing any moisture loss and scaling.

With jojoba oil it soaked into the ezcema area but didn't film seal the surface skin so I developed some surface dry skin scaling.

For me it was a toss up between Aveeno or Cetraben for ezcema so I let the pharmacist choose for me.

I know Cetraben is ok for me but I want to try Aveeno (it has good reviews) just so I can compare the two for myself. 

 

I do harbour some hope that the drops of frankincense are a little magi

Morrell, thank you for your response.  It is hard to try and figure out how much steroid to use.  That is one question I will be asking. At first  I was using too much and really became irritated. I got that cleared up and started using it again .  I didn't see an improvement ...probaly wasn't using enough.  Before going to my specialist,  I've stopped using the clob again. I am all over the place, I know.  I purchased Perrins and I like it.  I use Emul oil mostly.  I use Tea Tree cream  with with eucalyptus australiana and lavender oil at night.  That's when I tend to itch.  It feels really good and smells good.  I'm going to try the perrins on my face too.  I use emul oil all over, face and body.

Yeah, you can't expect Dermovate (clobetasol) to work quickly. I read somewhere that a tube should last a year – as it did for me. It takes many months to work deep down to calm the inflammatory cycle. Since stress is a huge factor, most of us get in the way of the progress of anti-inflammation by firing it up periodically with various upsets, as life will tend to do. My story, anyway. My whole life is about attaining peace these days.