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My mum is 78 in end stage COPD after living with it for 19 years. We nearly lost her last week. She had a flare up, went into hospital as the only antibotic that works now is IV. She caught flu while in hospital and it nearly killed her.
She's still in the hospital and has been getting physio assessments. They're talking about care in the mornings and evenings to help her dress and wash but I was surprised to learn today that this care is short term, a couple of weeks. I thought they were assessing for continuous care.
I'm also concerned that since she came off the catheter a few days ago, she has been incontinent and I think she's trying to hide it from the nurses. Also, she has been getting very confused and has been dismissing it as nothing. I've raised it with the staff a few times and asked if she could get a dementia assessment. I discovered the other day that my concerns haven't even been put into her notes. I'm really worried. I feel like she's going to be dumped in her house without adequate care. Also, she's down to about 5 stone now.
My question is this, with the combination of 24/7 oxygen requirement, frailty, memory problems and incontinence, should she even be living alone at all or should she be requesting continuing care in a care home?
The NHS is so massive and I never seem to be speaking to the right people.
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