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Hello, my son (now age 6) was diagnosed with epilepsy 2 and half years ago, with focal seizures, he was having up to 50 in a 24 hour period. His character completely changed too, he turned very hyperactive and aggressive.
Within 10 days of his medication (carbamazpine 5ml twice daily) he never had another. Our consultant is insisting it is normal to take him off the medication after being free of seizures after 2 years. I managed to persuade him to let him stay on it a little longer as his father was going through cancer treatment and I didn't need extra worry. Next appointment is in May, I know he wants to take him off meds (slowly) I just wondered if this is normal? Our consultant is just a peadiatrician, though he said he has an interest in epilepsy.
My main concern is him having a full seizure once off meds, or the meds not working second time round. Any advice greatly appreciated. Thanks for reading.
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