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joan83529 joan83529

Shoulder pain back

Hi. Would appreciate some advice please. Am 69, have taken medication for high blood pressure for years and Was diagnosed with pmr Jan/Feb 2017 . Started 15mg pred and all shoulder ,leg pain gone within days .Have managed to reduce down to 8mg twice since then but have been advised by doc to up dose to 12mg to combat odd feelings in my head, not severe pain just discomfort maybe exascerbated by fear of GCA. However for last couple of weeks have pain in left shoulder and arm and weariness/discomfort in thighs. Am currently using your dead slow stop method of reduction for first time and am between 10 and 11mg. I remember this was how my pmr started, thought it was pulled muscle till it spread so think this is a flair. I’m sure I’ve read on this forum that I can up the dose for a short time to zap the flair without having to reduce slowly again and that way I would return to 10/11mg. Questions is do I go back to 15mg and if so , for how long. 

   Further question, doc has suggested I go on a statin to reduce my cholesterol level  but again am sure I’ve read about statins and muscle pain . Any advice or information would be appreciated .

Thank you.

21 Replies

  • mary19068 joan83529

    Hi joan83529

    I have been prescribed 4 different statins and each one caused me joint pain. Needless to say i won't take anymore. However, i was told by a friend of a friend that half a teaspoonful of apple cider vinegar with filtered water each day will help lower cholesterol was 6.9 and doctor wanted it to be 4.0. I started the apple cider vinegar and made no other changes in my diet and my cholesterol was down to 5.9 six months ago. I'm due for another diabetes glucose and cholesterol test soon and am very imterested to see what my cholesterol level is now. Still taking a glass of filtered water and apple cider vinegar each day, it also balances body alkalinity/acid which helps reduce inflammation.....

  • alley2 joan83529

    Hi all sorry Joan for starting a discussion on your page couldn't work out how to start a new one.

    I've had GCA for 18 months got down to 8mg of pred felt okay for maybe a week had a lot of stress the body decided that it was going to play up with all sorts of pain went up to 15mg pred that was good sort of sorted the pain out  for the last 4 months now on 12mg pred  holding good at first doc thought PMR and couple of months after now Fibromalga he says I have all 3 has anyone been in this possition I'm 55 and getting sick of being sick.

    • Mrs Hobbles alley2

      Yes Alley2, I do! Fibromylgia pain is completely different to PMR as PMR us in specific areas whereas Fibro can be everywhere. I've found at high doses pred does dull fibro pain but not at lower doses.

    • EileenH alley2

      If pred relieves the pain it is ISN'T fibromyalgia.  Fibro isn't inflammatory and therefore doesn't respond to pred.

      But yes - PMR and GCA are really the same disease, just affecting different bits, and PMR is a symptom of GCA in many patients, about half I think will show signs of PMR at some point. But it is also possible to have fibro too. Though sometimes the "fibro" may have been confused with myofascial pain syndrome which is more common in patients with PMR and also causes trigger points to develop. Sometimes it responds to higher doses of pred but then returns as the dose is reduced as the trigger points are concentrations of the same inflammatory substances that cause PMR when they are systemic. Manual mobilisation therapies such as therapeutic massage can help. There are other techniques that help too. I got a lot of help from Bowen therapy.


    • EileenH alley2

      To start your own discussion - scroll to the bottom of the page and on the bottom left corner you'll see a black box saying "Start your own discussion" - just click on it.

    • alley2 EileenH

      Hi Eileen yep I feel I can get to Ten pred slowly I’m on Targin and this helps with the pain I can get around and do things without it I doubt I could.  I’m pretty well in tune with my body more than ever still got the diabeties I got my weight down to where I started and when I got to 15pred got the munchies again down to 11 today hunger urge for munchies slowly going thankyou for your answers they are reassuring 

    • Anhaga Mrs Hobbles

      I agree with PMRpro on that one - by the time I was diagnosed I had "pain all over" which is what "polymyalgia" means!  I might have had less trouble getting a diagnosis from the useless GP I saw first because she wanted me to be specific about where I felt the pain and by then I wasn't even thinking clearly enough to be able to tell her how it had started.  in my case the start wasn't overnight but a gradual build-up over quite a long period of time.

    • EileenH Mrs Hobbles

      Your PMR pain may in specific areas - but I can assure you that my PMR pain was pretty much all over! But then, I suppose it had plenty of time to build up. It all went with pred so it wasn't fibro.

    • alley2 ptolemy

      Hi my legs constant pain really bad at night Targin was the only thing that stopped it. Yes these sort of drugs are addictive if they are going to help me sleep and have some sort of life I don't care I will deal with that when it comes and my pain is all over head down some days Targin helps me.


  • Mrs Hobbles joan83529


    by Dr. Malcolm Kendrick

    Statins are the so-called "wonder drugs" widely prescribed to lower blood cholesterol levels that claim to offer unparalleled protection against heart disease. Many experts claim that they are completely safe and that they are also capable of preventing a whole series of other conditions. This groundbreaking study exposes the truth behind the hype surrounding statins and reveals a number of crucial facts, including that high cholesterol levels do not cause heart disease; that high-fat diets-saturated or otherwise-do not affect blood cholesterol levels; and that for most men and all women the benefits offered by statins are negligible at best. Other data is also provided that shows that statins have many more side affects than is often acknowledged. This hard-hitting survey also points a finger at the powerful pharmaceutical industry and an unquestioning medical profession as perpetrators of the largely facetious concepts of "good" and "bad" cholesterol that are designed to convince millions of people to spend billions on statins. With clarity and wit, this appeal to common sense and scientific fact debunks common assumptions on what constitutes a healthy lifestyle and diet, as well as the idea that there is a miracle cure for heart disease.


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