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Hello, my name is Tina. I am new here.
In 1995 i started feeling very tired , to the point after work i had to take a nape from 3 to 5 to make it through the rest of the day. I worked 5 to 1 or 6 to 2.
About 1998 i could not breath. Felt like i was suffocating all the time.
In 2000 i was a big mess with no answers.
By 2005 i starting feeling tingling in both feet..
It keep gettig mor intende as time went by.
By 2007 my my calfs aching really bad both legs
By 2009 it had spread to my thighs as well.
Also i have had surgery in 2012 for carpal tunnel both bands which test show i still have . tested in 2014.
I have been diagnoised with gastopheresis in 2011
In 2010 was diagnoised with H polori and retested after treatment came back neg. Was tested for H polori again in 2014 came back positive treated and restested came back neg.
In 2013 went for sleep study came back that my oxygen was dropping into low 70's while sleeping. Have sleep with oxygen since but honestley i dont sleep much due to pain.
Ok ive started having chronic issues with sinius infection in last 2 years lost of mucus.
My bladder feels full but yet i can not urinate . on other side i dont feel need to urinate and next thing i know is urine rulling down my legs.
Bowel problems have been diagnoised as ibs in 2007. But have not hard stool but it feels as it just lies in my rectom until i strain it out.halve the time i get no erge to poop.wierd right i know..doctors say take stool softner daily. My stool is soft. But do have perids of constipation and times spands of diarrhea as well. Crazy i know but true.
Ok for last year or over a tear. My blood work comes back i am dehydrated. I drink water all day long all night long. How can this be. ???? Crazy again......ok last year my regular doctor told me my blood work looked off sent me to a cancer doctor. He done blood work every month for 6 months and said blood work looks fine now so i dont need to come back.. Ok i was like what is going on?......
Nnow in past 4 months pain in my legs has spread accross my hips. To painful to do anything. Roll over in bed sitting twisting lifting leg and for get wipping my but normal pain is screaming out loud.
Went to er last week due to not sleeping or eating and barley getting aa shower cause of pain in my left hip.
She orrdered a ct scan and says your eat up with arthritis gavve me a referrel to se a neuro surgeon
Ok i s lready knew that and was told its not whats causing my pain
Er doctor says it is that the spurs are rubbing on nerves causing the pain.
First off i went because of hip but pain.. I have 5 masses i feel with my fingers but she scans by back...dah......i have been seeing an endocrenologist last 2 months cause cortisol came back 0.7 at 815 am very low...
Endo has sent me twicw for more bw. First one cortisol 6.6 at 845am acth less than 5. Both low
Second one 730 am cortisol 15.6 normal acth less than 5 very low..Now i go again tuesday for more bw cortisol fsh.and Lh. iGF I ECL Estradiol.
How can cortisol be 0.7. 6.6. 15.6. All am in 4 weeks..but acth always low which tell when to release cortisol....crazy....Its addisons disease or .cushing disease they say.. How... I have symptoms of both... Crazy.. Nothing about me makes since..
My hair is thinning like crazy.dry very itching skin for weeks at a time hands and feet puffy whole body feels bigger sometimes.
Have blurry vision right out of the blue usually doesn't lat long.
Fingers and toes hurt so bad half the time they feel like they will break.I am burning up all the time can not cool off.I feel so ill that i fell like i will die at any moment.
I forgot to mention i have severe indigestion heart burn. With a lot of nausia. Everytime they look ay my stomach i have ulcers..
I never eat fried foods spicy foods ect..
I do drink a couple of mt dew a day but mostly about a gallon of water daily because if i dont i stop urinating...
I have to take b12 injections and liguid form vitamin d all the time as well. Sodium always high i never salt any of my food. Low potassium and could keep going but i have no one to talk to so it helps just typing it to strangers.
Anyone out there with similar problems???
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