Sick for 2 years...Test said negative for Lyme...I believe it still may be positive...Help!!!

Lyme disease tests are definitely not 100% accurate. Some doctors will still treat for Lyme disease even with a negative test to make sure. Are you in the UK or USA? Another thing to consider is Biotoxin illness. Symptoms are almost the same as Lyme. It effects all body systems and causes inflammation. There is an online symptom checklist test you can take to see what the chances are that you have it. I would not give up, I'd try a different doctor yet until you find a doctor who is willing to find the cause instead of just treating the endless symptoms.

You are not alone. I’m searching for answers too. Problem is there are so many diseases that mimic these symptoms. Just out of curiosity. Do you have digestive problems too?  Like not digesting foods entirely?

Hello denisemomof 4 please read the book medical medium by Anthony William

Is the moderator from China

Hi denisemomof4

My daughter tested negative also for lyme disease but does show co-infection of coxsackie virus b, so i started to look into herbs for her.  She was very sick with flu like symptoms.  Body aches, headache, swollen joints and painful. Heart problems: complete heart block/bradycardia/low heart rate. (35-42) sleeping 35- during the day 42.

One of her doctors put her on antibiotic and all the symptoms cleared up except for the heart problems, and the coxsackie.  I have a doctor that wants to do IV vitamins. (Myers Cocktail)  Not sure what to do yet.  So, I started using herbs and her heart rate is increasing. (53-70) sleeping 43- daytime 57-70. I have to do more research on the iv vitamins. (as for the herbs just looked up lyme disease and herbs, there are a lot of stuff out there and forums too.) Praying for recovery for all of us.  

 

Hi Denise,

My case exactly. The ELISA was negative, IF Mosaic Borrelia and Westernblot was negative. However, my holistic doctor (who was the one to diagnose it after almost one year of having symptoms and every doctor i went to saying that i don't have anything and i'm healthy) recommended to have a Dark Field Microscopy. This is a test (not accepted by most of the "normal doctors) that is done manually (the doctor watches the blood through a microscope ) and it shows if you have spirochetes in the blood or not. Simple. Those  spirochetes can be borrelia, bartonella, babesia or even syphilis. The westernblot is positive only if the sum of the bands is above 60. There are around 20% of the lyme infected patients that have negative results on the tests. But this doesn't mean they don't have the disease. Only the their immunity doesn't "recognize" the disease. If the P41 band on the westernblot is above normal that is a clear indicator for borrelia, even more precise borrelia garini (the type of borrelia). I have read all the treatment and diagnose protocols from US, Europe (Germany) because 3 infectious diseases doctors told me that i am crazy and the Dark Field Microscopy is not accepted as a diagnose procedure. I asked: how are those spirochetes present in my blood? Why are there? Is it normal to have and live with    spirochetes in the blood? Nobody could answer me, they kept telling i am healthy. I am from Romania (Europe) and here there are only 3 doctors who treat this disease and diagnose correctly. The rest of them are rejecting this disease and just idiots. In the end, i am being treated by one of those 3, just started round 2 of antibiotics combined with something against parasites and A LOT of herbs and vitamins to lower the impact of the symptoms and support my body during the treatment. The doctors do brush you out because this disease is hard to treat, you have to have experience and takes time. Also you have to keep in touch with the patients to be able to change the treatment in case it doesn't work or the body just doesn't tolerate it. Find a Lyme specialized doctor and also a holistic one (with experience in lyme disease) so that you can receive the proper treatment. And cheer up, there are bad days but also a lot of good ones. Try eating more green stuff (fruits, vegetables) and lower the amount of animal proteins (meat, milk, eggs, cheese). They produce toxins who can increase the symptoms.