Sick of constant kidney infections and antibiotics
Posted , 41 users are following.
I'm 23 and have had trouble with Kidney infections all my life.
When i was little i had trouble with wetting the bed until i was 8years old.
All my life i've had infections, some urine but mostly kidney. When i was 20 I developed acute pyloneprhitis which overnight turned into septicaemia and i was rushed into theatre with suspected internal bleeding.
I've seen specialists in Dorset, Somerset and Gloucestershire and have had loads of scans and xrays which all confirm there is nothing wrong with my kidneys.
The only symptoms i get are pain (always always my left kidney only) and cloudy urine. I seem to get these about once a fortnight - i'm so sick of antibiotics (which dont even work that well anymore) that i've stopped going to doctors and just try to cope with it on my own by drinkingloads of water and taking painkillers.
Its been suggested that i take a permanent antibiotic which i take everyday for the rest of my life - but i'm only 23 and i hate taking drugs for anything.
I worry that when i'm older i will get kidney failure. I just CANNOT beleive that a normal healthy person can get this many infections and nothing be wrong? Or that there is nothing that can be done about it. The specialist in Gloucestershire told me \"It's very common and unfortunately technology hasnt advanced enough to deal with the disorder, so theres nothing we can do\".
I feel sick, tired and emotional everytime this happens and its so hard to cope with work, university, keeping a house and being a single mum to a 2year old when i feel this ill. I manage but it makes me cry a lot.
There must be some explanation or solution???
4 likes, 59 replies
brighteyes83
Posted
jennifer_81275 brighteyes83
Posted
I have the exsact same as you I have had urine infections for 14 year since I had my daughter but recently it's just getting worse and worse every time I drink fizzy juice I it gets worse to I'm sick of taking antibiotics every week I have been on a long term one to but nothing is working I'm just back from the doctors today I'm so sick of it now stood this morning crying my eyes out cause I just want this to go away Xx
amy04428 jennifer_81275
Posted
Hi,
i was just wondering if you've found any relief? I had a bad kidney infection 2 weeks ago and here it is back. I can relate to everything you said....I just want it to go AwaY. I don't drink fizzy drinks, try to drink a lot of water...etc
kat69206 brighteyes83
Posted
Did you ever find a solution ? Or reason ? I am the same as you nothing shows up on scans but constant urine tests showing infection , antibiotics not working ect , including ones after intercourse .
Any insight is helpful ( I also only have one kidney ) kind regards
natalie72838
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rachael03574 Guest
Posted
Since I was a kid I have always had trouble holding my bladder, as soon as I need to pee - I urgently need to pee. Even as an adult. I am 30 in May and they still don't know whats wrong (I guess until I became very ill with lumps on my kidney) but they do not know why and how to stop this.
They told me those lumps on my kidney was rare. And it would be extremely rare for them to ever come back. And whats happened within 2 months after being in hospital for a month somethings come back.
And right this instant I feel like I have an infection again, sharp pain in my kidney and bad smelling pee and soreness in my bladder.
lucy82981 rachael03574
Posted
Hi, I have exactly the same symptoms and experience having 4 infections in the past year, have been put on a different antibiotic by a Uroligist but it doesn't seem to be doing much and pretty fed up.
Just wondered if you have managed to discover anything that helps? Every time I have an ultrasound they say my kidneys look fine!!
rachael03574 lucy82981
Posted
Hello i hadn't updated in a while I ended up needed a kidney operation back in October 2015. They diagnosed me with a rare birth defected kidney at age 30. It was a good year battle from the start of my kidney symptoms which landed me in hospital for a month and off and on for the year with constant utis. It caused me to get septicaemia. My condition was called Cayceal Diverticulum.
After the op I continued for a few months to get utis and then I found out I was pregnant. Had my baby girl in sept in which we both almost died. I was rushed off from a placental abruption cause due to severe pre-eclampsia and hellp sydrome only found after all occurred which needing an emergency general anesthetic csection. Was rough. Here I am now uti infections clear, occasional I feel a little flank pain. They have just recently done a Radiation Scan to check the flow of my kidney (they could not do while I was pregnant). I actually get my results on Tuesday but I'd say i am officially normal again I hope.
How are you going?
jody54846 rachael03574
Posted
i am not so good myself, been suffering with utis since january, been hospitalised 3 times for kidney infections, just discharged from my last admission a week ago and still suffering flank and back pain, feels like my kidneys are sticking, im at rock bottom honestly.
lowri79390 Guest
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pauline95899 lowri79390
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swest81 pauline95899
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rachael03574 Guest
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That's horrible, I am glad they know what it is now and can treat it.
I have just had an mri and they found that my kidney seems fine but in the last 3 weeks I've already had another 2 infections. Now they are now considering the bladder. I now have to go for a cystoscopy so they can run the dye through like you mentioned so they can see it through the tubes because something isn't functioning right. Let's hope this is the end of it.
philomena54 Guest
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lowri79390 philomena54
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trudi30077 philomena54
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philomena54 trudi30077
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madge07350 philomena54
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philomena54 madge07350
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madge07350 philomena54
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philomena54 madge07350
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madge07350 philomena54
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kerry57811 philomena54
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Did the D-Mannose work for you? I am desperate for a cure for this agonising nightmare.xxx