sick since april 2016, need advice

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Hello, Im 28 male. Ive became sick in April 2016 and have not been the same since. I had mri, ct, blood work, stool samples, eyes checked , seen ent and everything came back good but Im far from good

Sorry for the long msg but this is affecting my life so much and here is a long history of how it all started

April 2016 I woke up one morning up to my work hotel (I work in another province) and it felt like I was drunk! Everything i tired to look at I couldn't. It was all a big blur. I didn't go to doctor until my left arm started to go numb and II couldn't focus on anything. Also my head was very lightheaded. (not sure if a coincidence or not but two nights before at work I got very cold, so cold in fact I couldn't talk proper afterwards for a little while. The cold came from my lower back and my left side of face was causing the problem for trying to talk. Anyways I went to doctor and just said I was dissy and he said I had vertigo and gave me serc and it went away. Before it went away I had very bad motion sickness which I never had

A week later I returned home the symptoms came back (not s bad as initial drunk feeling) after I tried to clean my ears (or that's my guess). My left arm went a little numb again. I got sec again from another doctor. My focus problems improved but I could telll something is off and not rite. FYI I continued to take sec until June 2017!!

Had bloodworm done, ct scan, stool sample and everything came back good but I still felt lightheadness, and was off and hard time to focus. Doctors just though crystals in my ears were off

Went to ent in August 2016. He finally explained that I didn't have vertigo as I'm lightheadness and I didn't have vertigo which is the room is spinning around me and all ear tests came back good. He couldn't understand why sec would work as to him it should be useless. He proceeded to clean my ears and removed a large chunk of wax from left ear.

two days later my left side of my face and my neck went numb. Felt very weak. I went to doctor who then thought I had nerve damage from the cold and requested I see neurologist..

I couldn't and still can't put anything in my ears such as listening to music as it makes me sick the next day

Tried to give up my sec pills but when I did my left eye would vibrate and i couldn't focus so I got back on them

Seen neurologist. in november 2016. He said to him everything seemed fine even though I told him I feel way of. He requested a mri

I continued to feel off and lightheadness and hard to focus and if i forgot a serc pill I would feel worst

November 2016, shoppers drug mart gave me the generic of serc which made me very sick and didn't work for me also

Had Mri Feb 2017 on my head. Everything came back good. Then in early March I felt perfect, best i did in years then all of a sudden mid march it was like April 2017 all over again but kinda different. My left eye wouldn't stop vibrating, I couldn't focus, felt like gonna throw up, and was gonna pass out at random times. This went away (back to my new normal which still wasn't perfect). I was at work april 2017 and got very sick again. Hard to focus, but this time felt very warm and flustered like I had a fever or blood pressure was up. My legs would burn. I checked blood pressure and it was good. I would feel the worst in the mornings and feel overheated after lunch. I had severe motion sickness. I had to be driving. and if I had to stop and go a lot in traffic it would make me feel sicker. This went away after 2 weeks and back to my new normal. 

I gave up sec pills June 15th to see how I would be when seeing the ent. I was a little bit worst but not totally

I went back to ent last week and he said again it's not a ear problem and has referred me back to a neurologist. He cleaned my ears and now I feel very off again

I do have anxiety over this all as I have a fear of getting sick and not working as I have a lot of bills. He said this could make symptoms worst. Im very tired all the time. My left arm feels weaker than right arm. If I make sharp left turns it feels worst than right turns. Hard for me to focus as I like to drift off when somebody is talking to me. This is affecting my work as I usually work at heights but have not since and my work choices are limited

Anxiety does run in my family but I only have it since I got sick. Could you wake up feeling like your drunk and serc help and it be anxiety? the part with things in my ears making me sick throws off the anxiety part.

Im just not sure what tests are going to be next.

I am overweigh a bit (511 and 220 as I stop exercising) and have diarrhea daily since a year

Sorry for the long rite up but this has been a very hard year and I have a 2 year old son and have been sick for half of his life so far

any suggestions greatly apppreciated

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11 Replies

  • Posted

    What did the neurologist say about the numbness in the left arm?

    Did the numbness over the left side of the face also include the forehead?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

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    • Posted

      Said it didn't make any sense. Left arm was very numb the initial time I got sick. Not when I seen him 9 months later. Also back in March after GP was checking my ears.. I couldn't speak normally for few mins afterwards. It was like it was hard for words to come out. I didn't see neturogist since then. Numbness didn't include forehead though. I can't see anxiety causing this.. what's your take?

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    • Posted

      To him there was nothing wrong with me as I could pass his " tests" which was the normal touch this hand or another. But if I look to my left and strain my eye I could easily throw up. To me there is something wrong but maybe my anxiety make it worst?

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    • Posted

      Absence of forehead movement with respect to facial numbness usually indicates a central problem (brain) rather than peripheral nerve.  However, your brain MRI came back normal.  Therefore, I am also not sure about what may be happening here.

      How long after the first appearance of symptoms did you do the MRI?

      Eleftherios S. Papathanasiou, PhD, FEAN

      Clinical Neurophysiologist

      Fellow of the European Academy of Neurology

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  • Posted

    Could you have buldging disc in the neck? Causes numbness and did you travel? Boats and planes make you get this boat syndrome, pretty sure I have it. It's awful

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    • Posted

      Not sure about my neck.. how would I know if I have it? I traveled a crazy amount via plane before this. Flying across Canada for 4 days work then back again. I do have bad lower back
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    • Posted

      I searched it. My lightheaded is just lightheadness. It doesn't feel like I'm on a boat or anything like that. It just feels off/different than normal. Maybe it's anxiety and I didn't really think I had anxiety? I

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  • Posted

    Yes. It could easily be anxiety, my anxiety has enhanced so much problems that I am staring anxiety meds. 
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