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side effect of cyclizine

Posted , 2 users are following.

yvonne67723
yvonne67723

I have just had heart surgery . And given iv. Cyclezine. I suffer from dystonia. I believe you shouldn't be given it if you have neurological problem?  I had no coordination , trouble talking , walking, just kept seein circles, drinking gallons.. Notes on record, patient was disorientated, ha what a joke!. I will look at this yellow card. I haven't heard of it.

2 likes, 7 replies

7 Replies

  • glenna67303
    glenna67303 yvonne67723

    Posted

    I sympathised with you, I was given Cyclizine and suffered dreadfully. I spend a week in the hospital as a result.  I’m still struggling with some of the side effects... . I thought I was having a stroke, because the symptoms were similar. I was told that one of the hospital staff  video tape me while I was experiencing the side effects.  I was also told the video they took  was for teaching  purposes. Albeit, I never saw the video The specialist told me the symptoms were caused by Cyclizine. 

    I reported it on the yellow card site, but I heard nothing, I don't know if I can trust them, as I don't know who the organisation is working for!!

    They want us to go away, but we should not give up.

    Keep us posted.

    • yvonne67723
      yvonne67723 glenna67303

      Posted

      Hi Glenn's. Sorry to hear you suffered more then me. In our intensive care unit ,there wear notices. No pictures or videos allowed. I wonder why? Iam only at post op 7 weeks. So not been back for post op appointment yet. If I get any answers, will post them.  Re yellow card only just heard of it on this sight. I received email thanking for my report of them. I asume. They just collect data. Then pass it on to the drug producer. Or a medic le board, not sure. I would demand a copy of that video . Good luck.
    • glenna67303
      glenna67303 yvonne67723

      Posted

      Thanks.  I was told they acted secretively with regards to videotaping me, as I was not coherent  at the time. But I think I will ask for a copy of the tape.

      Good luck to you too.

      Keep in touch.

    • yvonne67723
      yvonne67723 glenna67303

      Posted

      Hi glenna.

      if it was me and I had a video of the symptoms . And if I got a copy ,I would show people what it could do to you. But that's me. I hope you do get a copy if only for your own satisfaction . 

    • glenna67303
      glenna67303 yvonne67723

      Posted

      Good Idea, but I have to get hold of the video first, I know how difficult it was for me to get hold of my medical report from the hospital. But I will write to the admission department and see what they have to say.

      Thank you again.

    • yvonne67723
      yvonne67723 glenna67303

      Posted

      I know what you mean, it's like getting blood out of a stone. It can take months or years. I can't even see me getting any answers when I go to my post op.
    • glenna67303
      glenna67303 yvonne67723

      Posted

      Maybe we all need to get together and setup a website, that way we can find out how many people have suffered/died because of Cyclizine.

      We need media coverage then the drug company and the government will sit up and take notice. 

       

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