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Side effects of Clobetason Propionate

Posted , 9 users are following.

Morrell1951
Morrell1951

This forum has evolved into a place for LS sufferers to explore treatment strategies. Since there are only two medications prescribed by gynaecologists and dermatologists, including Tacrolimus, the vast majority of things we can do are either supplementary (like oily creams, managing stress and wearing cotton) or alternative – instead of using the meds. There is also a groundswell of experimentation with the general issue of autoimmune disorders, involving many controversial and non-standard 'protocols'.

Since a number of LS sufferers who are looking at alternatives are afraid of using steroids because of side effects, it would be good to see what people who have been using the ultra-potent steroid cream/ointment for multiple years are experiencing that they might think are negative side effects.

2 likes, 8 replies

8 Replies

  • Morrell1951
    Morrell1951

    Posted

    Sorry, unfixable typo: Clobetasol.

    One possible side effect recently posed by a sufferer who has opted out of using it is anger. (It's a popular meme that anabolic steroids derived from male hormones and used illegally by some bodybuilders causes anger.) I know that my mother used oral prednisone for 35 years for her devastating rheumatoid arthritis. The arthritis may have arisen from her already chronic anger, because the drug didn't make it any worse.

    Here's what I found online – an ehealthme poll of Clob users.

    Clobetasol propionate has active ingredients of clobetasol propionate. It is often used in psoriasis.

    Anger has been reported by people with depression, quit smoking, stress and anxiety, attention deficit hyperactivity disorder, pain.

    On Aug, 22, 2014: 2,047 people reported to have side effects when taking Clobetasol propionate. Among them, 7 people (0.34%) have Anger. They amount to 0.01% of all the 97,922 people who have Anger on eHealthMe.

    Time on Clobetasol propionate when people have Anger:

    n/a

    Gender of people who have Anger when taking Clobetasol propionate :

    Female 28.57%

    Male 71.43%

    Age of people who have Anger when taking Clobetasol propionate:

               0-1      2-9     10-19   20-29  30-39  40-49    50-59    60+

    Anger 0.00% 0.00% 0.00% 0.00% 0.00% 20.00% 20.00% 60.00%

    Severity of Anger when taking Clobetasol propionate:

    na

    How people recovered from Anger:

    na

    Top conditions involved for these people:

        1.    Restless legs syndrome (4 people, 57.14%)

        2.    Multiple sclerosis (1 people, 14.29%)

        3.    Psoriatic arthropathy (1 people, 14.29%)

        4.    Psoriasis (1 people, 14.29%)

    Top co-used drugs for these people:

        1.    Ketoconazole (5 people, 71.43%)

        2.    Paxil (4 people, 57.14%)

        3.    Lisinopril (4 people, 57.14%)

        4.    Allopurinol (4 people, 57.14%)

        5.    Meclizine (4 people, 57.14%)

  • hanny32508
    hanny32508 Morrell1951

    Posted

    May I ...?

    With the use of globetasol I took a risk.  Having a long experience (many years) with trying to balance my thyroid and later understanding the influence of the balance of the adrenal glands in this equation, I think I have reached the point that it becomes noticeable to others that I am somewhat agressive to this illness called LS.  Or better to say - I'm experiencing a period in which I have become angry at the limited possibilities or chances for any form of true improvement.  As hard as I tried, using whatever possible to fight this thing, I'm all the time thrown back to square one or worse.  

    I also think that I'm experiencing a slight imbalance with thyroid and adrenals.  Which affects the brain function.  I have been afraid of this to happen and that this was one of the possibilities with the use of glob.  

    Add to the mix some uninvited stress and one can see the picture. 

    Let's just try to figure things out, without hacking each other to bits.  We're all only human. 

    • hanny32508
      hanny32508 suedm

      Posted

      It could be a whole lot worse, not that long ago people with thyroid conditions were put in an asylum.  It's not really funny, but I have joked about it with my husband while I was suffering severe imbalance which affected my mental functioning, in spite of the basic medication:  "At what point will you have me locked up?"  Luckily these times are passe.  Yet, much more needs to be learned.  Let's just be open to it.  
    • Morrell1951
      Morrell1951 hanny32508

      Posted

      Hanny, I feel for you. My sister didn't take care of her thyroid condition properly (we suspect she was also more than an alcoholic, drugs, too) and eventually she became floridly paranoid and entered the mental health system, which I have plenty to say about, but not here. These thyroid issues are very serious and if I seem argumentative at times it's because there are lots of women like me who simply have lichen sclerosus (the topic of this forum) and want support with only that. I want them to see that it doesn't have to be an all-consuming complicated mission for them.
    • hanny32508
      hanny32508 Morrell1951

      Posted

      The unfortunate thing is, in hindsight, that one thing/part of the body at the time was treated.  Would the medical world look at the whole context, that what happened to me at that time would have been treated in an entirely different way.

      We're thrity years further and people start to feel, instinctively almost, that the human body could perhaps be healed in more than one way. And we learned that the whole body is involved.  Plus this time around, we're also 'allowed' to think with the healer and search alongside the healer.  

      I think to understand that one part of LS is 'sorted' in the corner of autoimmune diseases.  But so are thyroid problems and arthritis and even alzheimers, if I may trust the input from a friend doctor.  

      If somehow one could understand what causes the auto immune disease to happen,  many ilnesses in this auto immune field could perhaps be healed.

      I suspect that LS is not simple, it is probably a very complex "something."  If one only knew what exactly makes this happen. 

      In this I think that careful observation is crucial.  Why a flare up?  Why is it worse one day and calm the other?  What have I done different?  I haven't done it yet, but perhaps writing down everyday what one eats, how much, when etc.  may show 'accidental' findings.     

    • Morrell1951
      Morrell1951 hanny32508

      Posted

      I agree, Hanny. I used to tell a story about my mother's various specialists dividing her into unrelated parts.

      I've found so far that my psoriasis is extremely sensitive to stress, while the LS is not. I've gotten very good at staying calm so my skin is clear. Sugar and the loose bowels of coffee do it to LS.

      I'm afraid the saddest thing to face is that the very worst thing for LS is sex. I attribute most of my remission to giving it up, and the low level of damage (considering I've had it my whole life) to multiple long periods of celibacy. I'm satisfied that LS happens where it does because it's genetically fragile skin that can't take exposure to urine and other bodily fluids, including sweat. I do belive LS often happens to people with thyroid trouble, etc., but I can't imagine how and having been curious about the cutting edge of cell biology research for some years (like a mysteriously complex building block of life) I know just how little scientists understand what makes cells tick. So, in order to keep my skin clear, I'm not all fussy about every molecule I eat. Been there, done that – it's a stressor to me. But good for you if it helps you figure out your sensitivities.

    • hanny32508
      hanny32508 Morrell1951

      Posted

      Probably had LS for a very long time, but was only last year diagnosed.  The strict diet was already in place - caffeine, alcohol, sugar, gluten free - due to thyroid and adrenals.  And was doing very well with it. Stress was already my enemy and thus had adjusted my life.

       Puzzling to experience these severe flare ups when mostly I 'behave' and have done so for a very long time.  Would these very small indulgencies ruin the effect?  Why one day I get away with it and the other not at all?  Perhaps stricter is necessary?  At the moment I really don't know anymore.  Extreme summer's heat doesn't help either, I think.  We'll see whether things get perhaps better when it's no longer so extremely hot outside.  

      Real sexlife has gone out the window for a long time as well.  It was indeed the saddest thing to overcome.  But we did overcome. Something a person can simply work on and come on top of eventually.  

      It's not a bug, it's not contagious, it's hereditary (like some cancers?)  

      It's a riddle. Thanks for your response.

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