side effects while tapering down prednisone
Posted , 11 users are following.
I was wondering if other people get the side effects I feel when lowering prednisone. I am trying to lower 1 mg per month and am having trouble getting past 9mgs. On my second day of tapering I get all fuzzy minded, very tired and do not feel like doing anything, this continues on for about 1 week, not improving, then I give up and up the dose to 9mgs again. I thought 1 mg would not make such a difference to my feelings. The pain in legs and arms seem to be quite mild, not troubling me at all, just this feeling of malaise I cannot seem to shake off.
0 likes, 22 replies
kitsalley track
Posted
I am confused about this tapering thing. I have never been pain free. Just trying to taper without increasing pain and disability to the point I can't tolerate. Should I have different goal? Pain free? I wobble when I walk; have balance issues; when I turn over at night, I wake up from discomfort. But I'm still tapering . . .
FlipDover_Aust kitsalley
Posted
Is it pain, or stiffness? Pred will help with the pain, but not necessarily the stiffness. I have never felt 'cured', even when on reasonably high doses of pred.
The goal is to get to the lowest possible dose while still keeping the symptoms of PMR at bay. For some people that might be 20mg, others 1mg. Only you can know what pain you are in. The goal is NOT to stop taking pred, merely to control the symptoms.
track kitsalley
Posted
I also wobble when I walk, had a bad fall about 5 weeks ago, we have to be so careful, I also have balance issues, night pain is not as bad as it was, I have started on the DSNS method and tapering very slowly now, see how I go with it.
Hope you find some comfort soon.
T
lodgerUK_NE kitsalley
Posted
Tai Chi is also good, particularly with balance problems, but make sure the instructor knows about PMR as there are different types of Tai Chi
Have you tried Aqua Aerobics - again make sure instructor understands about PMR.
Anhaga lodgerUK_NE
Posted
Chen style tai chi, short form, is what we learn here. You just do what you can. If you can only bend your knee a little bit, that's what you do. Back is always kept straight, and knee always to be aligned with toes when bending.