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Silent Migraine

Posted , 5 users are following.

tami88741
tami88741

I have suffered from silent migraines for 30 years. I have always had the auro and a feeling of just not being with it but I can lay down and within an hour it is better with a slight headache that last for about 24 hours. Yesterday, I got the auro but it started more in my lower vision vs right in the middle and I couldnt remember easy things like the dogs name and even my daughters name. Has any one had this happen?

0 likes, 14 replies

14 Replies

  • karen69965
    karen69965 tami88741

    Posted

    I do this all the time....27 years of it and getting worse
  • margaret22116
    margaret22116 tami88741

    Posted

    Yes I get this but I have a certain type of migraine you get with aitoimmune disorders. In the end I began having seizures not necessarily losing consciousness but a kind of seizure you can have where you remain awake but not able to speak. I couldn"t understand what was being said to me. Very scary. X

    • karen69965
      karen69965 margaret22116

      Posted

      I have autoimmune diseases as well and no one has mentioned a migraine syndrome that goes with it...
    • margaret22116
      margaret22116 karen69965

      Posted

      Sorry just saw your comment. I can't post links but if you google migraine in Behcet's or with Lupus or autoimmune disorders a lot of information will come up with it. My symptoms are mainly neurological in nature and the migraine is part of that. Not everyone with aitoimmune disease gets the migraine x

    • margaret22116
      margaret22116 tami88741

      Posted

      Yes it will be connected to that. Do you have a form of vasculitis as that often causes the hashimoto thyroidotis too. It often attacks the thyroid gland.
  • liza82649
    liza82649 tami88741

    Posted

    Yes I have the very same symptoms but only if I get the aura in my right eye, that is when I get a bit of memory loss. But only for 20 minutes. If I lose my vision in the left eye, I'm fine.

    • margaret22116
      margaret22116 liza82649

      Posted

      Is your migraine part of a wider illness?? Or is it only migraine ypu suffer from. And do you get treatment.

      I am assuming you are uk based but may be wrong. There is a fab neurologist at the Royal Free in London called Dr Desmond Kidd. He is fantastic with these issues. You can get an nhs referral from a good gp. Xx

    • liza82649
      liza82649 margaret22116

      Posted

      No I'm from Australia. I don't see a specialist as I don't take drugs other than powdered magnesium which has been amazing in reducing the visual disturbances and other symptoms.

      I also only get them about every 6 months.

    • margaret22116
      margaret22116 liza82649

      Posted

      Ok. That is great you found something which helps and don't need medication. It can be a bit of a minefield as we all lnow x

    • liza82649
      liza82649 margaret22116

      Posted

      It can be, I hate them and still get scared when I get one but I've had them since I was 16 and I'm in my late 40's so you would think I would be use to them.

      Your right about not knowing families names when you have one of those migraines, I find if I stay calm it passes quicker..

    • tami88741
      tami88741 liza82649

      Posted

      It was very scary.  I have had migraines for many years but this is the first time I had some memory issues during.
    • liza82649
      liza82649 tami88741

      Posted

      I know it's the worst but it always comes back ( your memory) that is ...

  • margaret22116
    margaret22116 tami88741

    Posted

    You see Tami I have central nervous system vasculitis hence the reason I began to get tje seizures x
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