Silent migraines

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I have been suffering from 'silent migraines' for three years now which give me vertigo and anxiety and there is a little bit of a pattern of symptoms worsening the time of my monthly cycle. The past few months the migraines haven't just been around when I'm on my period, but every day. I have been to many different doctors; hormone specialists, acupuncurist, health intuitive, naturopath etc and nothing has seemed to work. I used to take an anti nausea medication called metachlopramide, it did work to some extent but it would make me very drowsy so it wasn't realistic that I take it throughout the day. I quite often take ibuprofen in the morning but that only makes it less severe. As well as not being able to concentrate because I have a foggy mind all the time, it is hard for me to get through a normal day at work as I constantly feel like I am going to fall over which makes me anxious. Has anyone had any luck in medications and/or services in reducing these silent migraines or saying goodbye to them forever ?

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14 Replies

  • Posted

    I would recommend seeing a Neurologist (with a real  MD degree.)
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    • Posted

      Have been to a neurologist and ENT when it all started 3 years ago, he diagnosed me with silent migraines but his only recommendation was to try the contraceptive pill to see if it worked. I am not looking for a prevention, I am looking for the reason that this is happening so I can get to the bottom of it and not have it interfere with my life any longer
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  • Posted

    I took my 13year old daughter to a headache clinic who said migraine pain stems from the neck. Left side head pain, left side issue with neck. Right side head pain, right side issue with neck. Unfortunately, my daughter was one of the cases who couldn't help but it a headache clinic may work for you.

    We too have exhausted all options. My daughter now sees a trauma psychologist as it seems her migraines/ cluster headaches go deeper than using pain relief (which has nevee worked) or having more tests done.

    Hope this helps

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  • Posted

    SAMe has helped me a lot, I started at 200mg. Got too manicy so I reduced to 100 mg. My psychiatrist recommended this as I'm so sensitive to meds. It's been 2 weeks with no migraines. That's down from every day! My vision and dizzy spells/ light headedness have greatly improved.

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    • Posted

      Wow, this is the first time I've heard of this, is it a dietary supplement? I too am VERY drug sensitive and get quite anxious when taking things that might make me feel strange.

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  • Posted

    Hi Jordan. I started silent migraines at age 14, 4 months after my first period. It took years of tests and specialists to find out what I had. I was entirely symptoms free for 10 years when taking an hormonal therapy. Some months ago, I stopped the therapy to start trying to have a baby. My silent migraines came back. They were awful. I saw again multiple specialists and tried flunitop. I had to stop because of the side effects. I am now trying to cope with high doses of riboflavin and magnesium. It does help a lot even if not perfect. The reason why you suffer from them might be like me...you are too sensitive to hormonal changes. I am hoping to get pregnant soon so I can take the pill again and get rid of my migraines.
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  • Posted

    I would add that you won t ever be able to get rid of the hormonal migraines until you get menopause. Using progesterone pills are wonderful because they make you less sensitive to oestrogen changes that affect the neurotransmitters in your brain. 
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    • Posted

      Thank you Nancy! I was taking natural progesterone under the tongue treatment for about 5 weeks and didn't notice any change but I was told by a different Doctor the other day that it does take a while to work. What kind of hormone therapy were you doing?

      Finger crossed you get pregnant soon !

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    • Posted

      Luteran 10mg is good but not sure if they deliver it in U.K. Otherwise, I also took Androcure and natural estrogen for a while. My migraines disappeared completely. You need to make sure the progesterone you are taking is acting as a pill. Your cycle needs to be modified and your estrogen levels remaining constant. My only trigger is estrogen going up and down all time. Our natural cycle, basically... funny how natural can be bad sometimes-lol
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    • Posted

      and you should give it three months to see if it works. The dose you are taking might be too small... good luck!
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    • Posted

      Also, don t waste your time with gp. They are ignorant about hormones. Talk to an endocrinologist or gynaecologist if you can
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  • Posted

    I posted a reply to this last week but for some unknown reason it was removed. All I said was that I had classic migraines for years and as I grew older, the pain lessened until they finally became just silent migraines. Through a lot of trial and error, I found a couple of triggers, but there were probably others I never identified. I had been taking magnesium and feverfew for a long time, but I still got them until I doubled the amount of magnesium I was taking. Since then, I haven't had any. That's been a few weeks. 

    If there is a moderator that can contact me and tell me why my previous comment was deleted, I would appreciate it so that I won't have that problem in the future. I have no idea why.

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    • Posted

      Oh! I would be very interested to know how much magnesium you are taking to get results... I am taking some but still t

      hese silent migraines since I stopped my pill.

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    • Posted

      I sent you a private message because I'm not sure why my last post was deleted when I said what I took. Maybe because I mentioned particular brands. I don't know.

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