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I have been all over these vertigo/dizziness forums trying to find a reason for my vertigo to no avail. I see people talking about MAV and am wondering if I may fit? I am desperate for answers. I can't do this anymore, it's been too long with no explanation.
Ive had recurrent vertigo since 2004 with no dx. It was basically gone 2011-2013 with lots of exercise except for some episodes here and there. I got an eye infection Fall 2013 in my right eye which brought my vertigo back full force and lead to horrible migraines on that side in my eye/eyebrow region. I still get them on that side except now it's ice pick headaches. The neurologist said its occipital neuralgia.
I recovered but not fully and then I started having dizzy spells and other issues last Fall (2015). I started seeing a flashing light in my left eye as well. Eye doc said I was having ocular migraines. I have horrible sensitivity to fluorescent light especially but sunlight makes me dizzier as well. I can't stand loud sounds such as busy places, dog barks, or if there's too much going on at once. I get horrible anxiety from it all. I feel dizzy most of my days and my head feels heavy a lot. I'm also very sensitive to medication so no anxiety meds can help me cause I can't get past the initial dizziness as a side effect.
Now I started having vertigo attacks which come out of nowhere (I feel them coming on, tho) and I get hot, sweaty, shaky, and my heart races. Everything spins and I feel like I'm going to get sick. Head feels heavy and nose starts to feel stuffy. High pitched ringing in ears. One happened last night as I was watching TV. Eventually the sweating & etc subsided but the vertigo/spinning stayed. I went to sleep and feel better today but I'm still nauseated and slightly dizzy. I also have diarrhea.
I have had so many tests over the years it's ridiculous. Heart tests, ears, eyes, dentists, chiropractors, etc. They find nothing which I'm grateful for but I just so badly want this vertigo to go away or an answer!! I was told one time I have a very slight nystagmus in my right eye but the long and short of everything is my CNS is okay and so are my ears. I was told chemical imbalance but the pill that was prescribed doesn't help as it just makes me dizzy. I do have small fiber neuropathy but I'm not convinced this comes from all of that.
Literally the only thing no one has ever tried for me has been migraine medicine. Never. It's never even been mentioned throughout all these years. Is it possible to have chronic silent migraines? I am at my wits end.
That's why I'm here. Sorry for the book but if anyone takes the time to read this, thank you for your help.
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