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silent reflux causing tracheal stenosis - anyone had this diagnosed?

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susiecooper16
susiecooper16

Hello - I have just joined this forum to see if I can get some answers for a long term problem. Was diagnosed with a tracheal stenosis 3 years ago and have had 5 surgeries but the medics don't know what is causing it - been tested for auto-immune disease and cancer - but now they are making a connection with silent acid reflux and I am awaiting referral to the gastro medics for possible Barretts. I do get heartburn from time to time and a recent endoscopic test said the top of my oesophagus was inflamed. The main symptom is an apparent overproduction of acid before my evening meal - like I am hungry and my stomach is demanding food, and I seem to oversalivate too. I have had a bout of gingivitis too confined to the left hand side of my mouth. In addition if I get an ENT infection, the stenosis seems to come back quickly - so I have speculated that the link is the virus infection for the stenosis but I am told that it could be the reflux making me more vulnerable to infections. I can't take omeprazole, ranitidine or sucralfate so only take gaviscon advance. I wonder if anyone else has had similar issues which connect the stenosis with reflux and might be able to offer any advice please? Many thanks.

0 likes, 4 replies

4 Replies

  • wknight
    wknight susiecooper16

    Posted

    Why can't you take omeprazole?  There are a number of PPI's so chat to your doctor or pharmicst about an alternative. I take Lanzoprozole. Gaviscon doesn't reduce the stomach acid, a PPI does.

    I use to have constant throat problems until I started on PPI's.

    • susiecooper16
      susiecooper16 wknight

      Posted

      Thanks for your reply and interest. Omeprazole causes an allergic reaction and I also react to ranitidine and sucralfate. I understand that Gaviscon doesn't do what a PPI does and, as I can't seem to tolerate any of the PPI's I am doing my best with diet (no caffeine or alcohol etc), raised bed head and gaviscon. This does help but clearly not enough.
  • wknight
    wknight susiecooper16

    Posted

    Have you spoken to a pharmacist? if not that is where I would go. Not all PPI are the same and you can explain the alLergic reaction you get and they can advise if there is an alternative. They train for 5 years so know more about drugs than anyone.
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