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My current symptoms came on a couple weeks after a mild 2-day bout with stomach flu. On 12/31/17 I woke up with severe nausea (no vomiting and have never vomited), diarrhea, vision problems (difficulty focusing, blurred vision, seems like objects are pulsing), dizziness, inability to sleep, and brain fog.
In the past 7 months I've lost 35 lbs and am quite debilitated. Currently I have the horrid nausea, dizziness, feeling like Things move when I look around, sometimes I need to hold on to someone when I walk, or stare directly down to walk, Pulsing vision, difficulty focusing vision, feeling like I am in a dream, Foggy brain, difficulty reading, stores or places w lots to look at make me feel awful, pressure behind my eyes, ear fullness and just recently, ear pain. I can have some good days but mostly very difficult to manage days.
I've had something similar occur twice before. Once at age 11 (1988) and again at 21 (1998). Since my biggest concern was the nausea I always went the gastroenterology route and Neither time were the doctors able to diagnose anything. In 1988 after several months with no treatment or answers it slowly resolved on its own and I was symptom free until it came back in 1998. I had to take a semester off college because I couldn't function. After months of suffering and probably as a last resort my PCP threw out the term "IBS" and gave me a rx for Paxil which seemed to alleviate everything and again my symptoms subsided.
Fast forward 20 years and here I am again. This time, I cut straight to the chase and in Jan. went right on Paxil since it seemed to have helped in 98. I thought - maybe this is just all in my head as I had been told Previously. The Paxil did not go well. It made me extremely agitated, made my dizziness so bad I couldn't drive and made my nausea worse. After 1.5 months on Paxil I cross-titrated onto Prozac. Along with all the bad side effects from Paxil, after 2 weeks on Prozac I was having suicidal thoughts which I had never had before. So I stopped that and decided psychotropic drugs are not the answer for whatever is going on with me. I should note, I had been given temazapam and Ativan to sleep and both were horrible for me.
I saw an endocrinologist and standard hormones were normal.
I was trying to avoid the Doctor rabbit hole route since it had been fruitless the last 2 times but I now realize I DO have something. This isn't all in my head. This isn't normal and I need to get to the bottom of this.
I saw a neurologist 2 weeks ago and she's requested an MRI and prescribed VRT (1st consultation is 7/24). She also referred me to opthamology. She made no mention of labyrinthitis or VN - it was actually my mom who suggested it which led me here.
I have an appt w an ENT on Monday and thanks to this forum made an appt w a neurotologist but that's not until 9/10.
Long story. Thank you for listening and if you have any similarities to my story I'd really love to hear. Before this struck me I was a very healthy and active mother of 2 young boys. With every ok day I get my hopes up only to be crushed by the awful days that ensue.
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