sjigrens flair - exhausted
Posted , 8 users are following.
Lately I'm exhausted and the only thing I can do is rest. My mind is active but my body feels like I'm dragging around bricks.
The glands near my jaw are sore and It's frustrating because it's difficult to explain that the fatigue is more than being tired.
I'm hopeful that it will pass but am tired of being tired.
Can anyone recommend an exercise routine? I keep reading about how diet and exercise helps but exercising saps my energy level and would love to hear how others cope with their symptoms.
Thank you and hoping you all are doing well.
0 likes, 19 replies
pam_87693 tracy79802
Posted
tracy79802 pam_87693
Posted
I live in the US and it sounds like BSSA is a UK only membership, is that right?
Thank you for responding. I appreciate it.
pam_87693 tracy79802
Posted
sally83545 tracy79802
Posted
I'm glad you were able to get your appointment with the ENT so soon.
I don't have any knowledge of arthritis but I'm sure that there are sites that are educational. I do have pain in my wrists but no swelling. I agree with Tracy, joining a group for Sjogrens support is a good idea you can learn so much. It is my understanding that Sjogrens cannot be cured but can go in to remission. The Sjogrens Fouundation has excellent info online and answers to many questions . I too was diagnosed with GERD before my Sjogrens diagnosis (I understand that GERD can also be related to Sjogrens) but since I started Plaquenil it is much improved and do not have to take meds for it. My doctor told me last week that people who generate less saliva have more issues with digestion since saliva helps with the digestion process so we need to chew our food better and drink more liquid with our meals. Try not to get too wrapped up in the amounts of medication you have to take to feel well (it is a losing battle). I am taking 400mgs of Plaquenil a day. Plus a med for pain and an antidepressant (life long treatment for depression). I was also on a blood pressure medication before but no longer, occasionally I take a pill for the GERD and Migrain, plus Tylenol almost daily. All these meds greatly increase the quality of my life and I am grateful that they work for me so try not to spend too much time thinking about the amount of pills you have to take to feel better (better things to think about). It really has helped me to educate myself with the resources availlable online. Feel better,
Sally