Sjogren's
Posted , 6 users are following.
I am concerned about my memory, 32 year old, diagnosed when I was 30. Mind goes blank, forget names of people I know. Mentioned this to my consultant and told it's just the tiredness. Mentioned it on another occasion and told I'd have to see my GP. Eventually went to my GP who said they'd never heard of SS causing memory issues but I've had people on the BSSA say they have the same thing. When I went to my GP I was presented with a sheet of paper with tests I felt were embarrassing, both me and my GP agreed I could quite easily pass these but if for any reason I didn't she'd have to refer me to a psychiatrist which she really didn't want to do. I agreed there's nothing wrong with my mental health but I would have thought I'd be referred for a MRI. Why do I get brushed aside - this condition is bad enough without being ignored as well. I'm just about holding onto my full time job. I even go light headed but no one seems to care. I'm now faced with going private, thankfully I have private healthcare through work but not everyone does. Please advise, many thanks.
1 like, 7 replies
samantha1951
Posted
I get this too and it's embarrassing. Unfortunately I think it's just part of the syndrome - even if I have known tthe person for years their name escapes me.
This disease is AWFULL.
Regards
Sammy.
rose77485 Galapagos
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kate288a Galapagos
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I am 33 and have Ss, raynauds and fibro. The symptoms you describe are exactly what happens to me. It's so embarrassing at our age.. I just have to laugh it off, but its very frustrating. Things that used to just roll off the tongue seem to get stuck and confused in my head...ive ben know to stop half way through a sentence and have no idea what i was talkibg about or what my point was (not something I've ever been known to have a problem with
But I have been told the term is 'brain fog' and that it's very common for any or all of these conditions. So please don't feel bad. Hope this makes you feel a bit better...almost part of a gang here aren't we!
Kate
pam_87693 kate288a
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pam_87693 Galapagos
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kitkatninja Galapagos
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pam_87693 kitkatninja
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