Sjogren's sufferer - what blood group
Posted , 15 users are following.
Hi, I'm new to this forum! I was finally diagnosed with Sjegren's only a year ago, however, I was diagnosed over 4 years ago with either Sarcadosis, Sjegren's, PBC for some reason were not conclusive. Understandably, due to the initial uncertainty of my condition I have begun to research our vast world of information. I have been looking into each sufferer's blood group. I would appreciate your feedback if you suffer with SS, on your condition, diagnosis and blood group.
3 likes, 32 replies
poemsgalore55 caroline-ian
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caroline-ian poemsgalore55
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Do you mind me asking whether you have children or have had miscarriages? xx
poemsgalore55 caroline-ian
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lily65668 caroline-ian
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It started 20 years ago with a ragbag of symptoms nobody could put together - dry mouth and dry eyes, both with bleeding, painful sores at the corners, generalised joint pains (but particularly in my hands), Reynaud's syndrome, peripheral neuropathy in hands and feet, under-active thyroid etc. 10 years to get a diagnosis (on the basis of salivary gland antibiodies in my blood-stream). I only got symptom-based treatment - all they're prepared to offer in my neck of the woods - but am actually quite pleased about that. I wouldn't like to have to go on steroids.
Anyway, five years ago, at age 65, it suddenly cleared up. Just like that! Well, more or less. I still have achey joints some days, but that's normal at 70, and I've had a bit of a problem with dry, sticky eyes during the last six months ago, but that's it.
I'm O Positive, but so are most people so I don't think that's significant.
Good luck with the condition, and don't give up hope. Remission can come out of the blue.
babycham caroline-ian
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caroline-ian babycham
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babycham caroline-ian
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PJAngel caroline-ian
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I live in NH
I have blood type At 30years ago diagnosed with Lupus .and in November 2014 with Sjogren's . Fibromyalga,Ostoarthritis, I also have had 5 misscarages they said I have an Rh- blood I too have 2 Beautiful Children in ther early thirtys and 2 Beautiful granddaughters 6+4 I have problems with stuffy head I can't breath through my nose at night .my eyes are always dry what can I do.I just don't take drugs western drugs mess me up can't function on them .I started with Actupuncher. Was diagnosed with frozen shoulder Dec.2014 very painful.
Rider caroline-ian
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Sunsetstuff caroline-ian
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jordan58854 caroline-ian
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lily65668 jordan58854
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kitkatninja caroline-ian
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Got pSS (sero-positive), hypertension, Raynauds & Asthma/Eczema.
katrina39208 caroline-ian
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I was diagnosed with sarcoidosis a year ago and I have been on prednisone about 5 months. My blood type is AB negative and whenever I became pregnant or had a baby I was always given a shot.
Strikerlm caroline-ian
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Hi Caroline-Ian,
i am rh o negative, I have successfully produced one child. Had the blood product shot after. She is o positive and staring to show sings that match me
Knew having anymore babies would be bad for me and baby so never tried for more..I am currently on the search for a diagnosis. I feel sjogrem's fits but blood work does not match. Have a lip biopsy coming up soon. Eye are so dry I'm on restasis everyday. Thyroid slightly out of whack and antibodies rising about (1500) but it's the one they associate with tracking thyroid cancer so family doctor disregards it (thyroglobulin) I think it's called. I see a respirologysts (can't spell) tomorrow, they want to rule out asthma. In the mean time the ent found I have a vocal cord that is not working so I'm booked for a ct scan. Fingers crossed. Have had sore throat for 4 weeks straight, longest time ever. Trying a nose spray for post nasal drip. Can't clear my throat cough up nothing clear my throat to no avail all the time to the point of feeling like everyone around me must be ssying....shut up! That all for now. Just felt like putting my two cents in
. Take care everyone.