Sjorgrens and Hydroxychloroquine

Posted , 5 users are following.

I have recently been diagnosed with Sjorgrens, although I believe I have had it for years.  The RA has perscribed me 400mg of Hydroxychloroquine but after a month of taking the medication I noticed that I was having trouble reading documents.  Can anyone confirm if this side effect will settle down, or will it only get worse?  I am also having a lot of pain in my Chest, Back, Shoulders and neck.

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  • Posted

    Hi Mandy ~

    I just responded to your other post.  I am not taking any  medication for my sjogrens however, I did go under extensive testing with the Kelloggs Eye Care Center and was a candidate for "prose" lenses.  They are designed to keep the eyes moist and the best part about them, you can see 20/20.  One drawback is if your white part of the eye is red, you cannot use them.  That is a never ending battle for me so I cannot enjoy  the rewards of the proses presently.  I'm headed to the eye dr later today and hopefully  I can take a drop or something to  help  that area.  Also, I use eyedrops with a gel in it all the time and an ointment at night time.  It helps to a degree.  I'm in stage 4 of sarcoidosis and sjogrens so it's hard to find that happy medium with me.

    I wish you well and also sorry you're suffering from this horrific disease.

    Warmly,

    Frustrated

    • Posted

      Hi Frustrated!

      Since I gave that info to Mandy I checked out the Theraspecs site and felt discouraged by the prices! I went to the place where I purchased my prescription glasses and asked if they had a similar product they did at more than half the price of the theraspecs!  They are called Cocoons Sunwear and are made by OVERX . They fit over my RX glasses and are terrific I couldn't believe the difference and the relief i experienced from the tension of squinting etc. I haven't checked out the site yet to see what else they offer but I plan on it.

      Feel better,

      Sally

    • Posted

      I meant LESS than half the price!!!
    • Posted

      Thank you Sally,

      I'll check out where I go.  Cocoons...how they come up with names.  I see why but oh well, nothing to think about really.

      Thanks again and you feel better, too,

      Frustrated

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