Sjorgrens I appear to be allergic to just about everything
Posted , 10 users are following.
I have primary Sjorgrens and been on hydroxychloroquine 400mg daily since Feb 2015, and now all of my muscles in my shoulders and legs have become really painful. I tried taking pilocarpin and this caused my right armpit to swell as well. Seems like everything I take just creates another problem. I have now been out and purchased some sea buckthorn from hb so I hope this is not another waste of time. Getting quite depressed with trying everything and nothing working. Most night I don,t sleep due to all the symptoms.
Does anyone else have all these allergies? I am now down to one perfume , and that is channel no. 5, I have the same issues with soap, shampoo, conditions and laundry soap, getting a bit sad now lol, rant over.
Mandy x
2 likes, 70 replies
shira75032 mandy95
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Any relief?
mandy95 shira75032
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Yes I have noticed a difference in my eyes already. So fingers crossed that it will work on the mouth next. Does say that it can take 1-3 months before you see improvement. So far so good.
Mandy x
shira75032 mandy95
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mandy95 shira75032
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Mandy
shira75032 mandy95
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morelia100 mandy95
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I'm very interested to hear about your progress with the sea buckthorn. Sounds promising. Sounds like you prefer to minimize the usage of prescription medications. Have you tried changing the foods you eat? Changing the way I eat has made a big difference for me. Many of my symptoms have gone away and only reappear if I eat certain foods. Hope you are feeling better.
mandy95 morelia100
Posted
I try not to use prescription medications but only because I have allergic reactions to them. I have had to stop taking the Hydroxychlorquin because it was causing problems with the muscles etc in my legs. Since stopping this medication my muscles are no longer a problem.
regards,
mandy
tracy79802 mandy95
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thank you for sharing.
shira75032 mandy95
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mandy95 shira75032
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yes I do take Claritin and yes they always help.
regards,
mandy
sonali88879 mandy95
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I have the same problem at the moment and I am not sure what exactly I am allergic too. It was confirmed that I am allergic to food color, Vit B complex, mushrooms and soya. I am taking antihistamines, antibiotics and God knows what else but its the same no change, no improvement. I look like I am constantly run over due to fatigue and now have developed a bad rash on my neck and face and the worst is when people ask me whats wrong and when I tell them they cant seem to wrap their mind around it. It is so good to share it with people who understand. I hope you feel better soon.
Sonali x
pam_87693 sonali88879
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barbara98940 sonali88879
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I've a couple of things to add that may be of interest. Firstly, with regard to food allergies and intolerances, I get one of two rescyions to many foids (i) hives, swelling and eczema or (ii) bloating, stomach cramps and diarrhoea depending on what I've eaten. However when the did allergy testing on me it virtually all came up negative. Food intolerances don't show up on the allergy tests. The other thing is that I'm allergic to soya and corn. Corn (or maize to give it its American name) is in everything from maize starch, dextrose, glycerol, (some sugar has glycerol added), golden syrup ... the list is very long and can be found on the web. So for those people who have said they can't find out what they're reacting to, try cutting out corn. It's easiest to just eat meat and vegetables for a week at every meal to see if there is an improvement. No processed meat as much of that has dextrose added. If still no luck feterminng what you're reacting to, look up histamine intolerance. Again there is another extensive list - look on allergyuk.
morelia100 barbara98940
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Soy
Corn
Dairy
Wheat
Sugar
All and any derivatives of these. Avoid for at least 3 weeks, completely--you will need discipline. After three weeks, introduce one of the food groups back into your diet being careful to ensure no overlap of the other foods you are avoiding. Eat 2-3 helpings of that food group for a day or two and be observant of your body or symptoms. See how you feel. Then do the same for each item. This is a cheap, non-invasive way to help solve the puzzle so many of us are faced with. Basically stick to whole foods. If you are not sure, then use the paleo diet as a crutch until you figure out a good diet specific to your needs. Ideally you would go about three months to a year eating a very clean diet, as most results are not seen immediately. But if you're intent is to find out if you have sensitivities to certain food groups, this is one way.
barbara98940 morelia100
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Also Morelia do research the parasite blastocystis hominis. It is a common parasite that is usually killed off by stomach acid. It is thought that antibiotics affect one's stomach acid (reducing it) and allow this parasite to live. People with this parasite have difficulty digesting a wide range of foods and have food intolerance symptoms if they do. See US site national institute of health (nih) to find out more. I became aware of this parasite when a pharmacist who cured herself of hashimotos blogged about it. Her stuff has been an invaluable source for me in the quest to improve my health. The other thing I've done is switch from levothyroxine to a bovine natural desiccated thyroid that can be bought 'over the counter' (i.e. the internet) without a predcription. This helps me as I have no functioning thyroid and am a poor converter of T4 to T3 and NDT has T3 already in it.
barbara98940 pam_87693
Posted