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Hi everyone, I'm new to this site and hope someone can offer me advice as very confused right now...
I am 30 years old. I went to my GP as, since having my son (14 months ago), I have been suffering with joint pain (mainly in wrists, hands and ankles) and intermittent pain in lower legs. I have also lost far too much weight without trying.. The doctor said I was looking flushed and said the redness in my face looked similar to the butterfly lupus rash.
So, I had some bloodwork done and my ANA has come back 'weak' positive. Apparently even with all the symptoms I have and the positive blood result, it still doesn't confirm a diagnosis.... My GP is referring me to a rheumatologist for another opinion.
Since this has come to light, I have also noticed that my hair is thinning rapidly and I now have what looks like a receding hairline My mum also reminded me today that when I was 14 I went to the GP complaining of pain in my knees which he put down to 'growing pains'... so, this could have been underlying for years ?? So many things are spinning around my mind at the moment
I have seen from other people's posts that it can take years to get a proper diagnosis but I am really scared already and don't think I could take any more waiting!
My family are also worried obviously but I don't know what to tell them as I don't have any answers either. I expect a lot of you have heard all this before but I just wanted to speak to someone who understands the frustration... I don't know anyone with SLE so don't really know what to expect. Thank you for reading this, I hope someone can relate, offer advice on how to cope with not knowing... Karen xx
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