1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Sleep

Posted , 6 users are following.

kelly0509
kelly0509

Hi All

1yr after diagnosed still can't come to terms with it

Meds I'm on 200mg Tramadol 100mg amtriptylinr

500mg of Co-Codamol

Does all this sound very high?

Also to all the ladies out there do you get sore breast? I've had sore one for about 12weeks bin putting down to fibromyalgia.

One more thing has anyone tried weed to help with the pain and sleep?

Many thanks for taking the time to read this X

0 likes, 11 replies

11 Replies

  • christine26761
    christine26761 kelly0509

    Posted

    Not sore breast kelly, but that says nothing..as there are sooo many differing symptons and we each get different ones to someone else most of the time...hope you get the knowledge you need..be blessed..have a lovely day..ive had this for 30 years now..and I'm much better than I was years ago..so theres light at the end of your tunnel..😘😘😘
    • kelly0509
      kelly0509 christine26761

      Posted

      Thank you I just need to listen to my body

      When it's say enough a enough

      Not fair on my 5 kids when I can doing anything.

      Because stupid mummy overdone things again X

  • Milly19
    Milly19 kelly0509

    Posted

    Hi,I'm very newly diagnosed to ,I to get sore breasts...I've had so many back operations to so I'm on 112mg morphie patches,naproxen 500 mg,paracetamol 500 mg,diazepam,and liquid morphie to,I'm in so much pain always in every part of my body. from boobs to toes,wrists,ankles.knees.shoulders.oh and recently had massive tummy troubles.one day can't go nxt to much!! This thing called fybromyalgia is a nightmare....chin up everyone.xxx
  • tiggers1
    tiggers1 kelly0509

    Posted

    Hi Kelly I'm so glad you mentioned

    About having sore breast . I've had the same thing for quiet a few weeks I don't know if this is a cause of fibromyalgia at first I put it down to hormones bit they've been sore for too long to be hormones . Also I was on quote few meds a while back like you bit this was before I got dignosed with fibro I had them for my back problems I have . Bit now I'm just on 50mg of tramadol . Which I don't feel helps a great deal . Have spoke to the drs but all I get is rude remarks about whay we have or feel like I'm banging head against a brick wall . Well sending warm hugs x

    • kelly0509
      kelly0509 tiggers1

      Posted

      I had so stop going to pain clinic was made to feel like it was all in my head.

      My sore breast calming Down now X

    • tiggers1
      tiggers1 kelly0509

      Posted

      Join the club I had pain clinc the other day and the dr was.so bloody rude I actually got annoyed and spoke my.mind to her which in the end shut her up.and she was nice to me then . X
  • tiggers1
    tiggers1 kelly0509

    Posted

    Hi Kelly I'm so glad you mentioned

    About having sore breast . I've had the same thing for quiet a few weeks I don't know if this is a cause of fibromyalgia at first I put it down to hormones but they've been sore for too long to be hormones . Also I was on quiet few meds with hight doses a while back like you but this was before I got dignosed with fibro I had them for my back problems that I have . But now I'm just on 500mg of tramadol . Which I don't feel helps a great deal . Have spoke to the drs but all I get is rude remarks about what we have or feel like I'm banging head against a brick wall . Well sending warm hugs x

    • deb97936
      deb97936 tiggers1

      Posted

      I used to take high doses of Tramadol up to 600mg somedays, but normal dose 200 - 300mg per day. Doses 100mg - 150mg morn and again at night.  I learnt that the Tramadol can make the muscles very tense and tight.  I wasnt getting any relief from pain either.  So I reduced gradually the doseage.  I found that I MUST still take 50mg in the morn and 50mg at night to keep the neck into the head junction settled.  If I don't take the doseage I'm in HUGE DIRE Straights.!

      I have had to reduce the Ibuprophen intake as I get so ILL..  my immune system takes a huge and regular belting!  And also its not good stuff for our system I have learnt.  Being a major cause of heart attacks and strokes.  Grrrrr

      So I only take when desperate...and it takes the edge off my headaches/migrains..

      I don't get relief from Co codamol..

      Can't take Amitriptyline either.

      My specialist doctor told me there is NO known cure or known PAINKILLER to kill pain long term.  There is ACTUAL MORPHINE but Naturally folk CANNOT live on Morphine long term.. As we get immune to the painkiller and have to up the dosage and of course Morphine slows down the heart rate, then a person basically drowns in their own fluid because the lungs build up the fluid.  

      AND also other heavy duty chemicals, short or long term 'side effects'... that can be devastating on the body.

      As for the Weed....YES, it does WORK, I know so.  It must be natural and good quality.  It is an amazing sleeping aid, and it kills the pain.  I used it twice.  No pain for hours, woke with NO pain.  

      If it weren't for the fact that it is illegal, I would be using it for sleep and pain at night time.  

  • Milly19
    Milly19 kelly0509

    Posted

    I replied but says my post has been sent for moderation why would this be.. Anyone  know ? X
    • deb97936
      deb97936 Milly19

      Posted

      Some times the system picks up on certain phrases and word content..  Did you use the name of a plant?  or a link to something?  No worries..  normally it's nothing serious and your post will be posted up...in a day or week.   :-)  

      I have had many of mine moderated to yet I haven't said anything untoward or outside of the rules.

  • sandybug
    sandybug kelly0509

    Posted

    Hi Kelly - I have been on Ambien nightly for about 7 years. At the same time that I was diagnosed I was also diagnosed with a bad case of plmd. I think sleep is a big component. I would love to use weed and I think it would help, but even medical is illegal in PA. Could the sore breasts be related to your cycle. I find that the majority of my pain is in my neck and shoulders. I'm not sure what the amtripylinr or co-codamol is, but a friend of my husband's (guy) was just diagnosed with stage 3 kidney disease from fibro meds so be careful
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.