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Two years on and I'm still looking for others in the world with information to share about Cauda equina experiences. I'm currently feeling confused about whether I am experiencing permanent nerve damage feelings or shifting sensations that are healing, or both together. I know there are no easy andwers but these forums have sometimes been my way to learn personal experiences this thing that is sometimes treated only as an ER medicine problem. I tend to explain it away as a back problem myself.
When I experienced the Cauda Equina my symptoms progressed as slow onset over a period of months and then got worse quickly over weeks. I started paying attention when I could not walk and was going 24 hours without emptying bladder/bowel. I was very active in seeking and paying for surgical treatment to stop the progression when I finally accepted I had it and was operated on with a decompression surgery after a desperate search for a surgeon. My post surgery MRI showed there was still some compression and my physio agrees there is still some L5 S1 I don't have a disk with fluid in it. Over the last 18 months I have felt bodily functions moving back through numbness to tingling to now pain along with some 'normal' sensations. Have others experienced this still in the following years? I still feel very unbalanced sometimes and at these times feel like my bad leg gets very heavy and tingling numbness in my spine.This is often after I have overdone things. Has anyone else had improvement in the 3rd year or further? Or any experiences of relapse in years living post Cauda Equina. Does anyone know why it is said it can be 3 years for nerves to heal with Cauda Equina. Any comments from the brave Cauda Equina survivors out there much appreciated.
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