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I've been suffering from this disease for 5 years
i'm still young , i'l be 26 years in next April
My problem started in 2014 with a sudden 'bad breath'
i noticed that my breath smells so bad in the evening for a while
after some months it's aggravated to a very stinking smell that comes out of my mouth
I've seen a lot of doctors and used a lot of antibiotics and nothing seems to work
So i gave up !
years later i noticed that the smell comes from a tick mucus that drops a lot when i'm sleeping
and this mucus have a very stinking smell that you can't even enter the room i'm sleeping in in the evening .
it's always dripping from my throat and i am constantly trying to clear it out
now it's more and more difficult to live with that problem
the mucus drops all the day to my stomach and it's very upset and starts swelling a lot
the thing is, i can't figure out where is this coming from local doctors have no idea about my case
when i wake up i absolutely need to eat a lot
otherwise i feel like a hole in my stomach i can't even breath
i'm having trouble breathing as i feel like someone is squeezing my upper stomach & chest
when i eat i feel relieved .
and i think it's from the quantity of mucus that enters to my stomach at night
i really can't find out where is the problem is coming from
I've seen a lot of doctors and no one have any lead!
i'm slowly dying from that smell & i can't suffer no more
i really started to think about suicide
i need help
please any lead where i should start to look for
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We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologies for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
If you are having these suicidal thoughts then we strongly recommend you speak to someone who may be able to help. The Samaritans offer a safe space where you can talk openly about what you are going through. They can help you explore your options, understand your problems better, or just be there to listen.
Their contact details are on our patient information leaflet here: https://patient.info/health/dealing-with-suicidal-thoughts, which also offers lots of other advice on how you can access the help you may need.
If you are having such thoughts then please do reach out to the team at the Samaritans (or the other people detailed in our leaflet) who will understand what you're going through and will be able to help.
What about the tests ? Did you go through endoscopy, breath test to find any type of bacterial infection?
Did you try antibacterial gargling or mouth wash?
The foods you are eating may be interacting with another disorder. Get some radiological scans and consult a nutritionist for a proper diet.
You may be suffering with post nasal drip when mucus from your sinus goes down your throat instead of through your nasal passages. It can make your breath smell really bad. You will have to be referred to a specialist who deals with the Sinus. If your in UK it's Ear, Nose and throat Specialist. You may have sinus polyps that causes your post nasal drip. Ask your doctor to refer you to an ENT Specialist because you may have a sinus infection as well as nasal polyps....
i spend more than 3K $ on this problem but it's getting worse every single day
First i went to a nose/ear specialist and he told me to do a MRI scan..
i did the MRI scan for sinus and they found nothing , everything was clear. there is no infection of anything.
she just gave me antibiotics : prednisolone and a mought wach
i used them , at first the bad breath was gone for the time i was taking the meds
when i finished the treatment after 2 days i noticed the mucus dripping back with the smell , and aggravated back when days goes, after 1 weak i was at step 0 , got back to here and she gave me a much stronger antibiotic the Moxifloxacin it was a very hard pill that caused me tiredness , pain and fatigue
after i finished it the same thing happened back the mucus was dripping back and the smell was there!
then i tough it was coming from my stomach because i have hard time breathing and upper stomach pain when my stomach is empty ( i have to eat every 2 hours) keep it full so i can breath well and have no pain
" i think it's because the amount of phlegm that was filling it , and it was upset ! it's the worst thing that can happen to anyone ..
i got to a stomach specialist doctor and did a fibrescope inspection 2 times with 2 different doctors
both of them took some of my stomach tissues and analysis after they didn't found anything abnormal with the camera scope , the result says that there is nothing in my stomach it was clean !
she gave me parasites scan & IFOBT scan (looking for blood in the cells) but everything was negative
nothing shows up
HEPATIT C / B analysis as well where negative
Blood test : Red blood cells and white blood cells where normal
only one single clue is thae ALAT & ASAT where a bit higher than the normal
SGOT/ASAT is 48 the normal (10-40)
SGOT/ALAT 59 the normal is (10/40)
at first she tough it was due to acid reflux i was taking days and days of Esomeprazole
and Anti-reflux pills , all sorts of all kind , they where not working.
and after all these analysis & scans the doctor gave me a 15 day treatment for helicobacter pylori because she tough also it may be the cause , i took the antibiotic she gave me it was a very hard treatment with absolutely 0 result , even that the test says that i don't have any presence of pylori she gave it to me!
the same thing happened after i finished the medicament , the bad smell and mucus were back !
she gave up on me and told me to go to an Nose and throat doctor.
this time the doctor gave me the same prednisolone that i already tried with some nose cleaning stuff
i used them as he told me and came back to him after 20 days with no result
he inspected my nose with a fiberscope camera and told me that nothing was showing up !
and he suggested me to go to a pulmonologist i did go to a hospital this time
did the lung scan they where fine !
the doctors here have no idea what's causing my problem
Stinking BREATH a lot of PHLEGM that cause me trouble breathing and stomach pain !
i wake up in my room like a rotten animal
you can smell the odor 5 meter away .
I GAVE UP
The saliva or mucus is constantly dropping from throat all the day clearing and spiting all day , the think is this mucus is stinking and smells like an animal have died inside me , that's so hard to fight !
i can't talk to people i don't get out from my room for months.
it's a very hard thing to deal with
the local doctors we have her are inexperienced and can't find out what's the source of my problem.
if someone could help i can send him all the scans and analysis i did for the last 3 years
i just wanna be cured or die in peace....
the only thing i found useful is Bitter orange
i take half a cup of it's juice during the night it seems to help a little bit with the odor
other than that i have to eat and don't leave my stomach empty for more than 2 hours or less
because when my stomach is empty it's very upset because of the amount of phlegm that's dripping to it. i start having trouble breathing and i feel a lot of pain in my stomach/chest
i can't find out where is the problem is coming from
i tried everything pills , mouth washes , nose sprays , antibiotics
nothing seems to work.
it's so hard to stay at your room for months without going outside
because you smell like a rotten animal.
Update march 27 , 2019
i was diagnosed with H pylori i finally know the source of my problems
i'm at day 10 on triple therapy treatments
so glad to hear you found some hope! how are the treatments going for you? are they helping?
I have been dealing with the exact same thing im 28 . It started when i was 7 . Ive always got told i had bad breath since i was a child . Im always spitting up mucus every day . i take 2-3 baths a day . I brush my teeth allday long. I stay away from everybody. i have young kids so i have to be around them . the older i get the worst it gets . i have tried to get help but they just stand back .. someone plz help !!!
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