Small Chiari & Getting the right Consultant. (Maybe Chiari 0?)
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First of all... Wow I have been so blessed and encouraged by the quick and helpful responses from this group! So thank you very much!
As some of you may have read from my previous post, I have a smaller Chiari, and I only just got told it was Chiari this week...
I was just wondering who here has had experence with a smaller Chiari and have been able to get the help they need??
Now I know that a small chiari can cause just as many symptoms as any other, unfortuantely my last neurosurgeon didn't believe that lol
I'm just wondering if there are people here who have experience with a smaller but very symptomatic Chiari?
I have no syrinx and the Dr said no hydrocephalus but I haven't had a CSF flow done yet.
Also if you are similar to me, who have you gone to in the UK?
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b2wc97455 torigrace
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Its only you know how worry and how painful you are, in my case, I could not even stand nor sit..i was that pain ful..I was so scared i thought I was going to die..the paramedic thought i had mini stroke, when I was arrive at the A&E, I promised you, I was in terrible state, worse than giving a birth...all my arms, legs felt like in and needles, my body ached, my head was spinning, dizzy, I was vomitting, OMG, I just could not imagine, honestly I felt like ...S,,,, hence I am so dying to have this OP...
torigrace b2wc97455
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How big is your chiari or what's the story with yours? I attached a photo of mine.
How did Mr Flint react to a smaller chiari, did he order any more scans?
Whens your surgery date?
Really pleased to have met someone like you!
And thank you for the suggestion of the other medication. I've got the first appt I could get with my GP on March 1st. I will discuss the meds with him then.
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