Small clear fluid filled blister spots on trunk,inner thigh and buttocks.

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Hi, Im new to this forum having been diagnosed with severe vulval lp (webbing, errosion and so on) oral lp. Im currently using steroid cream for vulval lp ive had no significant involvement as yet after nearly two months but hoping to see improvements when i go for my next app in November. However I have now found over the last 5 weeks I keep breaking out in little itchy sore clear filled blister spots on my trunk and inner thigh/buttocks has anyone else experienced these at all and if so can they be treated with tje ateriod cream also. Had about enough now seems not only causes pain/discomfort, embarrassment (itchy vulva) no sex life for well over a year now, sorry feeling a little.sorry fir myself today which is not like me 😊

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5 Replies

  • Posted

    I am seeing a fantastic doctor that only deals with issues of the vulva area.  After biopsy, a variety of meds, I am now using Elidel Cream.  Miracle. I started at 2X day, then 1X day. After a year, I am on 2X week.   

    Last month I was diagnosed with oral LP.  The periodontist has made impressions of my mouth and on Tuesday I get them. Prescription med to be put on plates 2X day.  The recession and other issues in my mouth can’t be addressed until the LP is under control.

    Talk to your doctor about Elidel. I used clobetesol cream at first, but no success (for genital LP).

    Let me know how you are doing.

    If you are in the Washington DC area I can give you the name of the specialist I used.


    • Posted

      Thank you for your reply and advise Ellen. It's nice to hear there may be light at the end of the tunel. I am.seeing a speacialist vulval dermatologist in the uk. She jas advised there are other treatments available if the clobetesol doesn't help. Have you ever experienced any of the fluid filled blisters at all?

    • Posted

      I did not have the blisters, but I did have severe erosion and ulcer like sores. The itching was horrible.  I really am sorry about your LP.  It took many trials of various meds to get mine under control. Clobetasol did not help me, but it is usually the first medication.  If it works for you. that is fantastic. The Elidel is a miracle med for me.  Don’t give up.  I did not have any one to talk to about it, being embarrassed by the subject.  Stay in touch. You will get better!
  • Posted

    Hi Michelle3,

    Sorry your having so much trouble finding the right medication for your vulva LP.

    I have oral LP and vulva LP. The medication that works the best on my vulva LP is Clobetasol Ointment. (not the cream). It clears it up within days. Hopefully your OB/GYN will prescribe it for you.

    Good luck.


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