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Hi all, Yesterday i was told i have SMN, Going to a expert clinic in Manchester in a few weeks to fully confirm it.
But my nero doctor said its not progressive however everything ive been finding (most usa sadly) is saying it is.
It started suddenly in my right hand about 7 years and then moved into my left then moved in both up to my elbow and has since then now gone into my right leg.
I lost my job because of it 7 years ago and have been on long term sick since then.
So while i fully get there is not a lot of info around about this condition my questions are.
1 - is it progressive.
2 - do or can people work with this.
3 - how much of a normal life can people have.
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