Small fibre or peripheral neuropathy and PMR

Posted , 6 users are following.

Sorry if my prior post got mixed up.  I am new to this.  I am trying to figure out if anyone has both PMR and idiopathic small fibre neuropathy (sometimes called peripheral neuropathy.....

0 likes, 6 replies

6 Replies

  • Posted

    Yes, I have peripheral neuropathy and PMR for about 4/5 years now.  Did you have any specific question?  It's a little difficult to know where to start.
  • Posted

    Thanks.  Are the two related; that is, absent another underlying factor like diabetes.  What medications are used in the treatment of the SNF progabalin, gabapentin, ???  Whatever else you can tell me.  
  • Posted

    I've never considered them to be closely related.  I think my peripheral neuropathy has come from a mixture of autoimmune conditions - I also have T2 diabetes and late-onset asthma, fibromyalgia and hypothyroidism. 

    I take currently gabapentin which also helps with the fibro, I did try pregabalin but it wasn't successful.  Gabapentin does help, in fact more than I realised when I had to stop it to begin the pregabalin.

    At a guess, I think the diabetes, the underactive thyroid and the asthma would have happened even if I didn't have PMR but of course there is no way of really knowing.

  • Posted

    Yes, I have both.

    How can I help?

  • Posted

    Did your physician suggest that there was a relationship between the two?  Are you on both Pred and Gabapentin or Pregabalin?  Or did you some kind of IV treatment for the SFN?  Just wondering.  
    • Posted

      The only relationship between the two I know of is that they're both autoimmune conditions. When you have one, you tend to get more.

      I don't use any specific drugs for the PN and am on preds and MTX for the RA. I'm sorry, but I don't know what SFN stands for.

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